PCOS Messages for March, 2001: An update on me-forgive me for not writing sooner

An update on me-forgive me for not writing sooner

From: Kristy (anonymous@obgyn.net)
Sun, 18 Mar 2001 20:44:16 -0800 (PST)

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Hi ladies,

I wanted to update everyone on how I'm doing but before I do I want to apologize for not writing sooner but I'm still not feeling well since my biopsy.

I'm trying to make sure that I don't overdo it but unintentionally I have overdone it twice and yes the second time was on Sat. I still can't bend too far either up or down.

Since having this biopsy done I've also had some pressure with going to the bathroom but thankfully no more lower back pain just before and after I have to go.

I won't be getting the results of that biopsy until I see my dr on the 28th.

Also, my dr decided to cut off my pain meds even though I really needed more b/c of all the pain that I've had especially in that back area of my vagina. I was just so thankful that my dr hit the nail right on the head. I was able to tell her where it hurt as she moved the speculum around. When she moved it toward the bottom of my vaginal opening it put a lot of pressure on the rectal area and of course hurt it.

I had called the lab that is doing the test of the samples to see if my biopsy results were in yet, and when I talked to them on Fri the answer was no. So that means when they are ready my dr may get them around the 21st or something like that. So that would leave me just one week until I have the results given to me.

Also for those of you who know about my dr wanting me to be evaluated by Pain Management my dr still hadn't gotten the letter from the Pain Management dr that says she can't help me. I had to call over there to find out what the deal was with that, and I called another time that day to explain the urgency of the situation b/c of the fact that I absolutely need pain meds as I continue to recover from this biopsy. Hopefully once my dr sees this letter from the Pain Management dr she won't give me a hard time about the need for the pain meds.

I did let this Office Manager know that letter really needed to get over there by noon on Fri (b/c my dr closes the office at that time), and that in order for me to get more pain meds my dr needed to see that letter. So she then said, "Well, that's between you and your dr". And I'm sitting there thinking "No duh". Oh it's also irritating that she had also said, "This is the third time that you have called." The reason for the second call was b/c of the fact that I didn't know if the message that I left with the answering service got thru to them b/c most of the time messages thru the answering service never get there (found this out the hard way from other experiences).

The reason for the third call? To explain the urgency of the situation as I said before b/c I knew that if I had waited until the Office Manager had called me it wouldn't have been until way after my dr's office closed which meant that there would have been no way to fax it over there until Mon.

After that I reported the incident to my ins co and had them file a complaint on an anon basis. It's the first time in a long time that I've had to complain about a dr's office. As it turns out that Pain Management dr and her office wouldn't have been a good match for me. I had heard some other not so good things about this dr before which made me know that I didn't want to go there even if she could help me.

There is one clinic in town that said that they do treat vulvodynia but they didn't say whether or not they could help me, but it would have still been a problem for me to get there b/c of the fact the group isn't my ins plan. There's no way on earth that my ins co would ever let me go out of network. One time my dr said, "Well, I would explain the reasons for going out of network" when I told her that they wouldn't let me. I told her no to that b/c they still wouldn't let it happen no matter what she said to them to try to convince them to let me go out of network. So that's why this dr that's in network reviewed everything that both my dr and I sent to her.

Oh, and that was the other thing. The Office Manager said that the dr doesn't usually write letters. Well, if that's the case then maybe she should have just talked to my dr to explain that she can't help me at all. And of course from what I've discovered from calling all of the other clinics in town they won't touch gyn pain at all. If my chronic pelvic pain wasn't endo related, and I didn't have the vulvodynia then it would be ok.

But even if there was a Pain Management dr that could help me with my pain problems I would have to refuse all the treatment options that they offer. I have to stick to the pain med combination that I have right now. I will be glad to explain off the list in more detail why I would have to refuse the treatments that Pain Management offers.

I don't know how much longer I will have pain in that back area since having the biopsy but I know that it will go away soon.

Hopefully by the week of the 28th I will be able to have much less pain but for now I'm having to also sit on pillows b/c when I sit on the chairs it hurts a lot some times.

I'm being very careful with bending still and trying to not do a lot of lifting if I can help it even though my dr didn't tell me that I had to be on lifting restrictions. Also since this biopsy was done I've had a flare up in some of my vulvar symptoms. I knew that I would. The burning has come from the vaginal opening but not in some of the usual areas like with other flare ups.

As soon as I get the results of the biopsy I will let everyone know what my next step is going to be.

Well, sorry that this is so long but I am going to have to close now b/c I've gotten quite lengthy. Please know that I'm always just an e-mail away, and will answer private e-mails as soon as I'm able to.

I'm doing a little at a time. Welcome to all of the newbies that I haven't had a chance to introduce myself to.

Take care everyone,

===== Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

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