PCOS Messages for March, 2001: Re: Can it be PCOS if blood tests are normal?

Re: Can it be PCOS if blood tests are normal?

From: anonymous (anonymous@obgyn.net)
Tue, 13 Mar 2001 19:03:02 -0600 (CST)

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In reply to: Sally: "Re: Can it be PCOS if blood tests are normal?"

Hi there,

I had symptoms since aged 16, was not diagnosed untill aged 22, I am not aged 31. During those 6 years I had no periods, more blood tests than I care to remember, the Gynacologist said it was not PCOS as the bloods were not elevated, his juniors said it was, I was like a guinea pig, I can tell you. After 6 years I visited an Endrocoligt once who did bloods and scans, confirmed PCOS, he wrote to the Gynacologist who said it was not PCOS, he apparently wrote back saying at the time he did the blood test the levels were not elevated.

Interesting????? I was like you all the symptons, no periods for 6 years. I KNOW i definatley have it, have been in hospital so many times due to the severe pelvic pain, had loads of ultra-sounds showing loads of cysts. U must persevere, it took me years to get a diagnosis, but I got there. I was in hospital 3 weeks ago, with agonising period pains, I could not even walk, the Doctor in Casuality said OH NO, PCOS does not cause pain, the next day after the Scan the other Gynacologist said yes its the PCOS causing the painful periods. I have learnt that I know more about this condition than my GP, Doctors in Casuality and even some top gynacologist

Feel free to email me anytime at tracyetchells@virgin.net

It can be so frustrating just getting a diagnosis

Take Care

Love Tracyxx t Thu, 8 Mar 2001, Sally wrote: >
>My endo says that the 'normal levels' are tainted meaning that they are
>actually lower than what is accepted. His explanation is that with
>upwards to 10% of women suffering with pcos then 10% of the sample must
>have pcos there for making the 'normal levels' too high. It makes sense
>to me.
>BTW... my endo spends half his day as in drug research and did some of
>the first clinical trials in using insulin reducers to treat pcos. I
>trust what he says since he has devoted his practice to it.
>
>Thanks,
>Sally
>At Mon, 26 Feb 2001, J wrote:
>>
>>At Sat, 24 Feb 2001, anonymous wrote:
>>>i have pcos and my blood work is always brutally normal.
>>
>>>I have the classic symptoms of PCOS; obesity, acne & excess facial hair,
>>>infertility, and irregular cycles. If a cycle does happen, I've had
>>>several occasions where it had to be stopped with oral contraceptives
>>>(when younger) and progesterone (as I try to concieve). My blood tests
>>>however,come back normal in the areas of LH & FSH levels, DHEA sulfate
>>>(39mg/dl) and free testosterone (1.40). Cortisol was also normal(5.6),
>>>but I understand that may not be an accurate reading as it was a random
>>>measurement done during a blood test. I'm wondering if it is possible
>>>to have normal test results and still have PCOS, or if I need to look
>>>elsewhere for solutions to my obesity (I've tried every diet imaginable.
>>>The one I have some success w is the low carb diet) & infertility. I
>>>haven't found a Dr. in WI who knows much about PCOS. My OB/GYN
>>>mentioned that this may be what I have, but didn't know much more about
>>>the problem. I've been searching for answers ever since.

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In reply to: Sally: "Re: Can it be PCOS if blood tests are normal?"

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