Re: Advice Please
From: Ven (anonymous@obgyn.net)
Mon, 5 Feb 2001 12:21:21 -0600 (CST)
Jodi, my Dr. an infertility specialist, is not the least bit interested
in this as far as I can tell. I just started seeing him for infertility
treatment. (I saw a different Dr. last year who found no cysts during
two months or ovulation monitoring) The new Dr. seemed surprised to see
the cysts since I don't "fit the profile" but said that this wasn't
anything to be too concerned about. To date he has not suggested I get
any treatment or further testing and he plans to start me on injectables
in the next week or so.
I have been doing some research on PCOS and Syndrom X and am very
confused. While I don't think I fully fit the PCOS diagnosis I do have
the cysts some of the characteristics.
Should I see an endocrinologist? I am worried that my fertility
treatment will be compromised if I start seeing another doctor. We have
been ttc for 2 years and at my age can't afford to wait any longer.
By the way, those hormone results are now 8 months old. Could my body
have totally chnaged since then?
I really appreciate all your advice.
At Mon, 5 Feb 2001, jodi wrote:
>
>the presence or absence of ovarian cysts actually means diddly squat in
>terms of diagnosing PCOS. some of us have them, some of us don't. AND
>some non-PCOS women have cysts, and some do not. they are a symptom,
>part of a larger syndrome, or more of a starting point than anything
>when getting a diagnosis - something you could theoretically watch and
>see if they diminish with treatment maybe.
>
>regular ovulation and menstruation are definitely NOT something that is
>seen commonly, if ever, in women with PCOS.
>
>one or two facial hairs is normal.
>
>the FSH:LH thing though... hmmmm. it's been a while, but i THINK the
>PCOS ratio is 3:1 or greater, LH:FSH. if that is the case, you do NOT
>fit the PCOS diagnosis. even if it's the other way, FHS:LH, you don't
>fit it.
>
>i have not heard of low LH signifying an adrenal tumour. what other
>tests has your doc run? testosterone? DHEAS? 17-hydroxyprogesterone?
>
>based on the findings you give, i would not accept PCOS as a diagnosis.
>what treatments have you been offered and what sort of doc is it you are
>seeing?
>
>At Mon, 5 Feb 2001, Ven wrote:
>>
>>After a recent ultrasound my infertility Dr. diagnosed me with PCOS
>>since I had visable cysts. I do not have other PCOS symptom, I ovulate
>>regularly, get my period regularly, am not overweight etc though I do
>>have one or two facial hairs. I am 36. My last hormone test showed my
>>FSH level to be 8.08 and my LH level to be 4.3. I understand that lower
>>LH levels could be a sign of an adrenal tumor. Is this correct? What
>>should I do now? My Dr. is not very responsive and does not seem
>>concerned with the diagnosis. I want to make sure this doesn't get
>>worse and that I am doing everything I should be. Thanks for any
>>advice!
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