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Re: Adrenal problems with PCOS

From: miriam (anonymous@obgyn.net)
Sat, 3 Feb 2001 15:34:35 -0600 (CST)


Hi I was diagnosed as having hypothyrodism and pcos 3 years ago. i took diane35 (bcp) for 2 years. after 2 years that my hair on my face and body didn't get better , i went to a diffrent doctor and he found that i had adrenal hyper plaisa and put me on dexamethazone 0.5 and took me off the diane, now after 8 months i went to a diffrnet doctor and he said that i have both, and i have to take diane35 a-n-d- dexamethazone,,,,,,after 3 years!! it's my first month on both medicantions (actually 3, also for the hypothyrodism). thank g-d i dont have any side affects. if u have more questions, ill be happy to answer, Miriam

At Sat, 3 Feb 2001, carol wrote: >
>hello,
>My daughter has been diagnosed with PCOS. I've been doing much of my
>own research on the subject, as the doctors have not given us much
>information. There is a new book out that is outstanding and addresses
>adrenal problems, how to diagnose, what to do. The name of it is
>Polycystic Ovary Syndrome, The Hidden Epidemic. The author is Samuel S.
>Thatcher, M.D., Ph.D. It just came out in January 2001. Dr. Thatcher
>is a PCOS expert in Tennessee. I got the book at Barnes & Noble.
>There is another one out that I thought was very good and addresses
>adrenal problems. It's called Androgen Disorders in Women by Theresa
>Cheung. She talks about the adrenal disorders also and says they are
>more common than ovarian disorders.
>Thanks to these two books, my daughter got her adrenal hyperplasia
>diagnosed. Unfortunately, the doctor does not want to give her the
>low-dose cortisol that we think she needs.
>If anybody has tried the low-dose cortisol, please tell us how it worked
>for you.
>At Fri, 2 Feb 2001, Kim wrote:
>>
>>Hi~ I just read your message...I know its old but, I have been suffering
>>from an underactive thyroud for 2 years now and was just reciently
>>tested for adrenal problems. With this new doctor.....he wants to check
>>all possible problems. You mentioned you had mestrual problems.....were
>>they heavy or light?? Mine are light eventhough I am hypo and I also
>>have a low TSH. I'm trying to find answers to these strange results.
>>What symptoms did you notice with an adrenal/ thyroid problem??? THANX
>>At Sun, 30 Apr 2000, DJ wrote:
>>>
>>>I just went back to my doc last week to discuss a bunch of bloodwork
>>>that I had done a couple weeks ago. He didn't give me the PCOS
>>>diagnosis I was expecting, but instead adrenal hyperplasia. My DHEA was
>>>really high and another hormone(can't remember) was too low. He gave me
>>>Aygestin, a progesterone pill to induce a period and he said that he was
>>>going to put me on a progesterone based birth control pill instead of an
>>>estrogen based, I guess since my estrogen level was normal. He also
>>>told me that the high DHEA level was the reason the excess hair, weight
>>>problem, menstrual problems etc. For 2 weeks I had been low-carbing,
>>>trying to lose weight, but not even that helped me lose. The doc told
>>>me not to even try to lose until I was on the BCP for about a month and
>>>hopefully that would straighten my levels out, and that I should see a
>>>considerable difference in weight loss success. He said that my
>>>hormones are so messed up right now that they won't let me lose any
>>>weight.
>>>I pray that this doc is right. It is frustrating and I have been messed
>>>up for over 8 years now.
>>>
>>>At Thu, 27 Apr 2000, anonymous wrote:
>>>>
>>>>Every adrenal test I had at the endos turned out abnormal. I am
>>>>diagnosed with hypothyroid and PCOS. The PCOS diagnosis is around two
>>>>months old though I stopped having periods 10 years ago at age 21 and
>>>>never knew why. I have the weight and other extreme symptons. I have
>>>>been tested for cushings and my doc says that is negative however he has
>>>>told me I am showing the start of adrenal insuffiencies. He also has
>>>>mentioned me having Polyglandular autoimmune disorder so i suppose my
>>>>adrenals could be going bad also. Several adrenal hormones were
>>>>skyhigh---VMA, Catchonomines(spelling?)aldosterone, these were like 7
>>>>times the norm. My cortisol level was 5 and I know this is low. I am
>>>>overweight so this makes no sense. I also am wondering about this
>>>>stuff. he says its due to the severe case of PCOS I have. Also the
>>>>DHEA was high too. I dont know what the ACTH was, Ill have to
>>>>ask....but my adrenal scores were so bad, I got an adrenal scan done for
>>>>Cushings--adrenal tumor--- which turned out nothing and one more test I
>>>>forget the name of for Adrenal hyperplasia that he said turned out
>>>>negative. My testosterone is high. He says all these hormones are out
>>>>of whack due to severity of my PCOS. I know this is a technical
>>>>question so if anyone can help i wll appreciate it.
>>>
>>>--
>>>DJ
>>>

--
miriam



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