Re: Metabolism, Being a supersized PCOSer, Cushings sites, Fat rights etc. etc! :)
From: anonymous (anonymous@obgyn.net)
Sat, 13 Jan 2001 22:23:39 -0600 (CST)
see below---
>You know what I find sad? That doctors thought it would be humanly possible
>to physically eat enough to gain 350lbs in 28 months, making it "your
>fault". How do doctors think that anyone could gain that kind of weight
>without something going awry in the body's metabolism or endorcrine
>system???
Oh they blamed me and it was horrible. I even used photos and letters
as proof. Some doctors would gasp! oMG you doubled your body weight in
a year! and this idiot that said that just demanded I get weight loss
surgery and with a PCOS center NEXT door! misdiagnosed me and wrote me
off when I refused WLS! I was a 630lb asthmatic I probably would have
died! I called him this year and left him speechless. This was the
Center for Advanced Medicine in Chicago. I had to fight so hard to get
diagnosed!
I have signs of Cushings....so keep that in mind. I still think PCOS
may be a symton of an overlying condition then my main problem
especially since I am so severe.
Spiro oddly seemed to do MORE than it was supposed too. I havent gotten
this explained. I used to have my face bloat in and out and it has made
me lose weight and got rid of that too!
Even women in countries where fat is the desired body type, so
>they sit around having people feed them and don't do any exercise don't gain
>those kinds of weight.
This is true. When I lose more weight I plan to go on a talk show.,
Seriously. I want the world to know some fat people are getting messed
over and why this needs changed!
>Hope you feel better!!
I am...I am recovering a normal life slowly. I see friends and even
went shopping all day yesterday. I do have limitied mobility but I can
handle Borders and small shops.
Thanks EMMA!
>love Emma
>'
>
>>----- Original Message -----
>From: anonymous <anonymous@obgyn.net>
>To: Multiple recipients of list PCOS <anonymous@obgyn.net>
>Sent: Sunday, January 14, 2001 3:38 AM
>Subject: Metabolism, Being a supersized PCOSer, Cushings sites, Fat rights
>etc. etc! :)
>
>> Thanks to all who answered the post. I think most people here are going
>> to agree fat prejudice and hatred are affecting this diease and how we
>> feel about ourselves and even getting cured. It shouldnt have taken me
>> 5 years. Sometimes I wonder how much disablity I could have avoided if
>> a doctor had done the right tests when I was 21 and said goodbye to my
>> period forever? I do have some bitterness about that and getting so sick
>> almost to the point of death. I dont want this to happen to anyone
>> else.
>>
>> Also those with metabolic obesity do not get a fair shake in our
>> society. PCOS I believe is a worse illness in that many people do blame
>> the sufferer and this is not correct. This is part of the medical
>> establishments fault in how they treat obesity. Diets usually lead to
>> gain. I have my own theories about what works because Ive worked with
>> other severely obese people. The only superfat people I know who
>> succeeded in regaining a mobile life where fat people who accpeted
>> themselves and lost very slowly by healthy lifestyle changes. I have
>> mentors who now are in the 200s and 300s in weight who were once,
>> 600,800, and 900lbs. I found these people throught the internet!
>>
>> I believe by my own research the link between PCOS and CUshings is much
>> stronger. I tested postive on every test for Cushings except for the
>> high cortisol and even that was borderline high. I have the hump even.
>> I have severe hyperadrenalism I still have to lose about 20 more lbs to
>> get MRIS done for the total outrule. Even my own medical diagnosis has
>> been affected by medical establishment neglect of fat people, why
>> shouldnt a 470lb women beable to get an MRI. One thing most people over
>> 300lbs even cannot lay flat on their backs and breath without
>> suffocating. which makes the MRI impossible and this also shows the
>> lack of concern towards fat people.
>>
>> Every sympton of Cushings is the SAME as PCOS except for the hump and
>> the osteroporis.
>>
>> For those wanting more info...I suggest http://www.cushings-help.com. This
>> site is excellent. I go there for support and another cushings board.
>> Im going to admit that there I do feel I relate better. My symptons are
>> so severe. There are many people I relate to well here too....but I
>> have found a lot of help and support on these boards too.
>> Another one is http://www.support-groups.com, scroll down the the Cushings
>> board.
>>
>> The thing that gets me is I gained over 350lbs in 28 months and the
>> shame and blame I got was so horrifying. Most of you dont realize I
>> traded a NORMAL life for a life of disabilty between age 26-27 and age
>> 28-29. I know how bad PCOS can get and what it can do to ones life. I
>> also know fat hatred is ruining the treatment of this diesease and
>> making people wait years for understanding and true help. I lost more
>> weight even while on androgen blockers.
>>
>> Fat hatred and prejudice is affecting all PCOSers in a bad way. One can
>> lose weight without being shamed and blamed in the first place. Actually
>> learning to love ones self free of this horrendous cultures messages
>> about fat...actually leads to better health in the long run.
>>
>> thanks for all the responses. Im glad I had many people on my side!
>> take care!
>>
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