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Re: It is very hard to be a supersized woman with PCOS

From: anonymous (anonymous@obgyn.net)
Thu, 11 Jan 2001 16:53:21 -0600 (CST)


I just wanted you to know that you are not alone! I never had a weight problem until PCOS. It is miserable to be told that you are fat and not eating right. I gained 110 lbs in a very short 8 months. (pre-diagnosis) Many Doctors and so-called friends looked at me like I was lying when I told them how much I truly eat. (which is very little). I finally started telling them, "I don't care how many ho-ho's and dingdongs you think I ate! The fact of the matter is it is not normal to gain weight like this!". I wish that I could offer you a cure but, of course I can't. What I can tell you is not EVERYBODY looks at you and thinks that you have no self-control. I understand and many many other women understand. No matter how much you weigh or what you look like just remember that you are a beautiful huming being and complete strangers, like myself, care!

>It is very hard to be a supersized woman with PCOS. Coming to this
>board is very difficult to me as I weigh in the midhigh 400s...It is
>tiresome to be told as long as I eat right and I exercise that I
>shouldnt be having such extreme symtpons that it is all my fault. I had
>that huge weight gain to the 600s, Ive talked to you all about but I had
>a stable weight where I was happy for years before I started the gain.
>
>I dont eat any sugar. I eat desserts only on holidays. My house hasnt
>seen butter or margarine in two years. I snack on radishes cauliflower,
>I only allow myself to eat Chinese food once every two months unless I
>cook it myself. I limit carbos and allow ONLY complex carbos in this
>house. I am still very fat. Ive had some losses but even then weight
>is a constant struggle.
>
>People almost have this attitude that PCOS is a self inflicted illness
>and IT IS NOT. I am tired of this atttitude being propagated on this
>board that as long as we eat all the perfect foods, exercise and "do all
>the right things" that we no longer will have this disorder. I think
>that is deteriorating the actual seriousness of PCOS.
>It reminds me of all the doctors who told me while I was gaining even
>while on steroids...they werent honest about, that I was just fat and
>needed to control myself and then I wouldnt be sick. That my
>hypothyroidism, severe brown spots and other symptons were all my fault.
>
>All I know is I was at a thin health weight when this trouble began.
>Thats when I lost my period at age 21. I had spend the summer working
>and hiking at a camp in the woods where we even had to walk a mile to
>get to the showers! I had no idea I would be disabled and over 630lbs
>7-8 short years later!
>
>Fatness is hated in this culture. I am tired of the condemnation. I
>think everyone on this board needs to read Losing it by Laura Fraser and
>some fat liberation literature to read how this shame and blame stuff
>has affected fat people and actually led to worsened health.
>
>Unlike the size acceptance movement I belive one should lose weight if
>at all possible--for health but Im not going to do it at the expense of
>my dignity and being told that I am worthless or to blame for my own
>endocrine disorder.
>
>This stuff applies to us here. Here we are with a serious endocrine
>disease being told that we are fault for its symptons even by fellow
>suffers. This makes me cry even. I cried enough that it wasnt Cushings
>because then I would have had a cure and at least some understanding.
>This makes me hate this disease even more.
>
>Sometimes coming to this board makes me feel very badly. I come here
>for info. Here is where I found out about Spiro and from a friend, so I
>was able to even get better.
>I know other fat PCOSers are feeling like they are to blame on here




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