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Re: Questionaire (oops the rest of the questionaire...I put it all together here)From: anonymous (anonymous@obgyn.net)Sun, 17 Dec 2000 09:36:47 -0600 (CST)
My questionaire got cut off, didnt notice this but I will answer the rest of the questions after I post these first ones again so there is no confusion./ 1. When where you diagnosed? This spring 2000.
>2. What are your symptoms? Severe obesity--very central obesity, brown spots all over my body, Hirituism-facial hair, thick other hair, hypoglycemia, high blood pressure, high insulin, balding receding hair line, fatigue, depression, anxiety, increased infections, no periods since I was 21--I havent ovulated since then or had a period, hyperadrenalism, shakiness, hypothyroidism. Probable polyglandular autoimmune syndrome. I was so severe adrenal tumors were suspected but I havent been able to get an MRI to totally outrule but this is my diagnosis for now since my cortisol is low. Im 32.
>3. How long are you aware of having these symptoms? I had a severe weight gain begin in 1995. during 1995-1997, my body weight tripled. I gained 350lbsplus. I peaked at 630lbs. However I had earlier symptons while still thin, I had my periods disappear forever at age 21 and the brown spots on my skin the ancanthosis nigrosis...I may have the spelling off was quite severe even when I was just a teen. There was no explanation for it. My PCOS diagnosis explained a lot. My hypothyroidism was SEVERE during my weight gain...I lost most of my hair, had severe skin ulcers, dry skin, digestive troubles, fatigue to the extreme.
>4. What treatments are you on/have you tried? I cant take Met for other health problems. I have been on Aldactone and this has helped my weight and some of the symptons. I also take birth control for theraeputic reasons.
>5. How do you feel about these symptoms? The best I can. Ive made many changes to my life. I make sure I try to have as stress free a life as possible. I am losing weight have lost over 160 down from the peak but have a ways to go still of course. I have to eat a very strict diet to control the worse of the hypoglycemia. The Aldactone helped me alot and I was happy for it. Thyroid pills too are A LIFESAVER!
>6. How is you menstrual period? On my own I simply dont have them and stopped when I weighed 210 at 6 feet tall. On birth control they are very light....but come at the same time. I do get cramps and severe PMS ironically. I dont understand this!
>7. If your period is painful, what can you do to make it better? Sleep and walking around. Exercise seems to help my cramps it always has.
>Anything makes it worse? Stress and cold weather.
>8. When was your first period? age 13 and they were very painful.
>9. How do you feel when having your period? Relieved. the week before I suffer from depression. I think its from the birth control pills. But earlier as a teen I was in a lot of pain.
>>10.Are you overweight? If so, where’s your problem area, and when did I suffer a severe weight problem and weigh now around 470. I was 630lbs in during 1997-1998. Started to loose late 98 when thyroid got to normal. I have chosen no starvation diets and have chosen to lose slowly on a healthy lifestyle. I have a very deranged metabolism.
>11.How do you generally feel about yourself? This seems to fluctuate. I have pride in my intelligence and artistic sensibilities. I feel beautiful around my husband and friends but sometimes I do feel badly about how I fit into society.
>12.How would you describe your childhood? Stable, My parents were perfectionistic which caused some problems. I am building a good relationship with my mother now...but growing up my parents and I couldnt relate personality wise. I was artistic and sensitive and they were practical, and stoic which led to much strife. My siblings were my best friends and only a year apart from me.
>13.Would you say you were more of a tomboy, or a little “princess”? Tomboy.
>14.Any history of abuse? Just criticism. My parents criticized everyone! but really no abuse otherwise.
>15.How do you look at your own femininity? Outside of my marriage where I feel all girl, I think I should have been a man at times. I am more masculine in some traits that I have. I hate makeup and fashion. But I like art and I cry easily. So Im like in the middle of man and woman. I feel androgynous more than anything else most of the time.
>16.Any food cravings? If so, what are they and when did they start? I crave cheese and meat and pasta. I NEVER crave sugar and can sit in front of a table like yesterday at a Christmas party and not even touch a piece. I also can crave salt majorly even though it is very bad for me in terms of edema.
These started when I was 21 and periods disappeared.
>
>17.Have you tried to become pregnant? If so, did you succeed? I have never tried. I even used birthcontrol while knowing I was most likely infertile because of the poor state of my health. I am too heavy to even consider it.
>18.Have you had any miscarriages? No
>19.What do you do to make it easier for yourself to live with PCOS?
I learn what I can to control it. I eat a very weird diet, this has
helped...it took me months to control terrible panic attacks and such
but I did get to a point where I got all of this under control and I was
happy about that. Hormone pills have improved my life considerably. I
also make sure that I am not stressed...because Ive learned stress makes
my PCOS worse. During my gain I was under severe stress and I know this
connection does have medical merit. stress makes insulin resistance
worse.
I also have friends that i met online with severe PCOS like me who have
helped and are invaluable.
>
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