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Re: ... VERY WORRIED!!
From: Molly (anonymous@obgyn.net)
Mon, 20 Nov 2000 12:19:01 -0800
Hi Krista,
My 17 year daughter has had all of the things you are speaking about.
Believe me, we understand the pain, all of it. She has tried double dosing
the pills in order to shut her ovaries down. Most pills put her through a
roller coaster of depression. Currently she is taking one Diane35 pill a
day and has done fairly well. The really best things for her has been
metformin- she worked up to 1500 mg per day and started to see results
after 4-6 months. She had rapidly gained 40 lbs but lost it all on
metformin. She also takes spironolactin.
You are not alone. With time her ovarian pain has gotten
better...sounds just like yours. Have you gotten Samuel Thatcher's book on
PCOS? It is availale from pcosupport.org from Amazon.com. It is excellent.
I have found the very best souce of info is this group of women on this
discussion board. Feel free to email us privately at mollys@home.com or
rachels1@home.com.
Take care!
Molly
-----Original Message-----
From: Krista <anonymous@obgyn.net>
To: Multiple recipients of list PCOS <anonymous@obgyn.net>
Date: Monday, November 20, 2000 11:37 AM
Subject: Re: ... VERY WORRIED!!
>Hello -
>
>Thank you VERY much for the response. I have scheduled an appointment
>with another general practioner for tomorrow ... one way or another,
>I'll get SOMETHING done --- even if I pay out of pocket for the
>endocrinologist. I have been keeping a diary ... of EVERYTHING, dates
>AND symptoms ... but with the doctor's disinterest, it has not been
>used as of yet. Lastly, by "double dosing," I mean that I am on a
>mono-phasic pill and have been taking two per day per doctor's orders
>(in his, "Well, I don't really know what's wrong with you --- let's try
>this and see what happens" approach to my problem). Is this a bad
>thing??? While it has not taken away the hirsuitism or hair loss, I do
>have more energy and *more controllable* emotions since I went back on
>the thing --- but if I'm doing something bad, I'd REALLY LIKE to hear
>it. Thanks again for your time ...
>
>k. gracie
>
>At Mon, 20 Nov 2000, lesley wrote:
>>
>>You are experiencing unusual pain, and your doctor refuses to
>>investigate further, you need to find a doctor who will and get rid of
>>the current idiot...
>>
>>By the way, what do you mean by double dosing of your pill?
>>
>>What may help, when you go and see a doctor, is to keep a diary of when
>>the pain occurs, along with what days you are pill free/taking the sugar
>>pills. And the days when any of your symptoms get any worse. A copy of
>>any tests to take to
>>a new doctor may prove useful.
>>
>>Not too long ago someone posted lots of useful links, which you may like
>>to investigate, before your next doctor visit, as there are other
>>treatments now for pcos, not just the bcp.
>>
>>Good luck
>>
>>--
>>Lesley
>>
>>At Mon, 20 Nov 2000, Krista wrote:
>>>
>>>Hello -
>>>
>>>I'm going to *try* to make this short because honestly I'm VERY
>>>concerned about things and could probably ramble on for PAGES. I am a
>>>24 year old who just within the past 5 months has had a FAST ONSET of
>>>symptoms comparable to those seen in PCOS patients --- hirsuitism, acne,
>>>hair loss and difficulty in losing weight. All of these symptoms have
>>>been of the mild degree, and when I saw my doctor, he told me that he
>>>thought I might have PCO and that because my symptoms are mild, that the
>>>birth control pill should help. I've been "double dosing" on the pill
>>>for three months now --- and I've seen none of my symptoms disappear, my
>>>hair loss now goes in cycles of some nature, and I *think* I'm
>>>developing new symptoms. Problem with all of this is that the doctor
>>>I've been seeing doesn't seem to want to bother with me --- I set myself
>>>up to pay out of pocket with an endocrinologist because I've stopped
>>>sleeping at night worrying about this MESS ... but the most recent
>>>thing that happened has scared me and I can't wait to see the specialist
>>>without a *little* peace of mind (hopefully). I have PAIN ... in my
>>>abdominal area ... on a sporadic basis. Its like what I imagine
>>>menstral cramping would feel like, but I've ABSOLUTELY NEVER had
>>>menstral cramps before and it is happening at ALL times in my "pill
>>>cycle," not just the "PMS" times. I am honestly frightened out of my
>>>mind about it and feel as if I have no where to turn for answers. Should
>>>I INSIST on seeing someone about this NOW?? My doctor makes me feel as
>>>if I'm overreacting ... his unconcern is HORRENDOUS --- and it actually
>>>angers me to a GREAT degree. If this were a man growing breasts or
>>>something like that, he'd be seeing every specialist in the world ...
>>>but I'm just a woman turning into a man --- who cares about that, right?
>>>WHAT CAN I DO and what should I do? I'm sorry this was so long and would
>>>just GREATLY appreciate ANY peace of mind anyone could offer. Thanks in
>>>advance ... krista grace
>>
>
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