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Re: I HATE PCOS!! Now I have to accept I have it!From: Angel (anonymous@obgyn.net)Fri, 17 Nov 2000 18:11:46 -0600 (CST)
At Wed, 15 Nov 2000, Jennifer wrote: > >I tend to feel shaky, light-headed and panicky if i don't eat on a regular basis. is this hypoglycemia? what can i do about it? any diet recommendations?> > >-- >Jennifer > >At Tue, 14 Nov 2000, anonymous wrote: >> >>Ive tested negative for Cushings. This was my third test and I decided >>the last. Have had everything done. EVEN ACTH! Im all done. had >>diagnosis of severe PCOS last spring. now I have to accept it. >>Everything points to a pretty bad PCOS case. My doctor was worried >>about the hyperadrenalism so thats why we went down that path. >> >>Ive been told I never can have children. Have been accepting this. >>Doctor told me I am too severe to ever consider even if I manage to lose >>all my weight and get more control over my other health problems. >> >>I think I was being silly perhaps getting that third test but I wanted >>to make sure, ya know. I have so many weird things going on....even >>vitaligio and hearing loss and hypothyroidism. My doc sees all of it as >>a polyglandular thing. >> >>Oddly this disease kind of frightens me. I feel like I have to live so >>rigidly to keep control of all the sytmpons. I control hypoglyecmia by >>a certain diet watching all proteins. I dont eat any sugar. Ive lost a >>ton of weight but very slowly. I hope to lose the rest. ALdactone has >>helped alot. >> >>I am feeling kind of confused. I really did think I had a more severe >>problem like Cushings. This has kind of thrown me for a loop. But if >>you know you have a doctor who is really smart and he says all this is a >>result of steroids for my asthma plus severe PCOS plus thyroid....and >>does about 30 tests that all point to PCOS and then you get two three >>cortisol tests that turn out negative or low. Well now I have to accept >>that this is what I have. >> >>The funny thing is admid all these medical tests outside of weird >>symptons Ive gotten better in general. I have a lot less panic attacks >>from hypoglyecimia and my body is doing wonderful on a diet that is >>based on vegetables and good proteins. However sometimes I am scared. >>It does seem that I have the disease I consider a lot less straight >>forward! >>I am stuck with this body for the rest of my life and I have to take >>care of it the best way I can even though it is most defintely a love >>hate relationship. THe hate isnt about looks, I look very pretty, even >>as a very large woman,Aldactone was like a damn beauty pill too but the >>muscle pains and other things I have faced. >> >>I also have realized that gentically my family had PCOS majorly. Grandma >>hit 450lbs at her peak and had miscarriages at least 4,--she had thyroid >>too. I remember she had a mustache. SHe died when I was young. My >>brother is very heavy on very little calories and is facing infertility >>issues--Syndrome X, My mother had severe endometriosis. >> >>So this is it, no more medical tests, what a relief. I had so many this >>spring before i got the May diagnosis of severe PCOS. >> >>Im seeing my doctor for the first time in 4 months which is a LONG time >>for me to go without seeing a doctor! YEAH! its only for a checkup. >
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