PCOS Messages for November, 2000: Re: Let's Start a Personal History File for Others to use in getting Diagnosed..

Re: Let's Start a Personal History File for Others to use in getting Diagnosed..

From: Bells (anonymous@obgyn.net)
Thu, 16 Nov 2000 19:08:51 -0600 (CST)

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This sounds like a great idea - I was also thinking a web page referral as opposed to having to send a large document tootling around the web. Some of the stories of battles people have had, and the emotional trauma we have suffered at the hands of an ignorant society would be good! If I did something like this on a web page, would anyone object to me using their stories or quoting their experiences? I wouldnt put any names or even locations on it - aside from just the basic 'USA' or 'UK' or Oz. Just a way of gathering together some of the info. Even though we advise people to check the archives, sometimes it can be hard to sift through them to find something relevant. I know there are lots of support sites out there - but what would people like to see on a reference site? Someone a little while back was gathering recipes - we could put them on too?

Just rambling here, dont mind me!

At Thu, 16 Nov 2000, Jo-Nita wrote: >
>There have been so many posts lately about women trying to gather
>information to take to their doctors in an effort to get diagnosed. Do
>you think it would be helpful for those of us that have a confirmend
>diagnosis to keep a draft of our personal history, symptoms, tests used
>to diagnose us, medications and treatments we are on, what works for us
>and what doesn't and our Physician's names & recommendations ( if they
>are PCOS friendly) so that we could print them off and send them to
>anyone who needs more ammo to take to their physician's office. I know
>doctors won't take much stock in our "laymans'" messages, but it may
>help the women feel more confident & in control as they face these
>"Doubting Thomases". I just thought it might be helpful to have a
>concise, orderly version of our stories at hand to send to those in
>need. Let me know what you think. I know that when I first went in to
>suggest that my problem was PCOS, I would've felt a lot better having
>reliable information from other PCOSers around the country & world!
>Please feel free to e-mail about this.
>
>--
>Take Care, Jo-Nita (Illinois)
>

--
Thanks,
Bells in Sydney, Australia

Next message: jolee: "Re: Needing to Vent, Labs are Back"
Previous message: Shelly: "Re: progestrone cream...great information"
In reply to: Jo-Nita: "Let's Start a Personal History File for Others to use in getting Diagnosed.."
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Reply: Sonnet: "Re: Needing to Vent, Labs are Back"

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