Re: Is PCOS being discussed at all in the dept of health?
From: Skye (anonymous@obgyn.net)
Tue, 29 Aug 2000 23:18:44 -0500 (CDT)
He he he. I called the BC Women's Hosptial looking for information on
PCOS... the woman that answered the phone paused and asked if that was
a woman's health issue (and I didn't giver her the acronym either!).
I also checked out the Canadian Health Network on line, a health site
partly funded by our government... they had NOTHING on PCOS and
eventually pointed me in the direction of pcosupport.org. There are
only two Canadian sepcialist listed on this page, both in Toronto.
At Tue, 29 Aug 2000, Jennifer wrote:
>
>At Mon, 28 Aug 2000, Val wrote:
>>
>>i may sound naive...
>>and i guess i am...
>>does anyone know what the state of discussion, if any, exists in the
>>government about this disease?
>>i mean, i know that many people who should be helping us
>>and others with PCOS (our doctors, insurance companies, and even public
>>officials) are the ones that are making us feel that we are the ones at
>>fault...
>>"well, just lose weight and you'll be fine."
>>i just want to start taking control...
>>not just with my own health...
>>but i decided to dedicate my life to fight for our rights..
>>not just us with PCOS but all of us that feel we have been let down by
>>the politicians that get their paychecks from our taxes...yet, they
>>don't listen.
>>the same for the doctors that if it wouldn't be for the sick they
>>couldn't afford their cars and homes and so on.
>>sorry if i sound angry...
>>but if i am going to have facial hair, depression, fatigue
>>and all that good stuff, i want to make sure that i make some kind of
>>difference...
>>that way people remember me for dedication and passion...
>>not a beard and acne.
>>sorry...
>>just needed to vent
>>
>>--
>>val
>>
>Val, I think you've brought up a good point. I think the best thing we
>can do is not be ashamed of PCOS. After all, it ISN'T our fault. We
>didn't do anything to "get" PCOS. Yes, it is difficult and embarrassing
>to talk about. But, I think the more we openly discuss this syndrome,
>the more information will get out there, and in turn the medical
>community will HAVE to stand up and take notice. Plus, if we talk about
>it to everyone, then somewhere along the lines we will help someone get
>the diagnosis they need. The more diagnosis there are, the more doctors
>are going to have to study it. And yes, hopefully someday we can all
>participate in a "National PCOS Awareness Month" or something of that
>nature. :)
>
>Love,
>
>--
>Jennifer Dean
>Moderator of egroups/NashvillePCOS
>
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