PCOS Messages for August, 2000: Re: Is PCOS being discussed at all in the dept of health?

Re: Is PCOS being discussed at all in the dept of health?

From: Jennifer (anonymous@obgyn.net)
Tue, 29 Aug 2000 22:01:42 -0500 (CDT)

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At Mon, 28 Aug 2000, Val wrote: >
>i may sound naive...
>and i guess i am...
>does anyone know what the state of discussion, if any, exists in the
>government about this disease?
>i mean, i know that many people who should be helping us
>and others with PCOS (our doctors, insurance companies, and even public
>officials) are the ones that are making us feel that we are the ones at
>fault...
>"well, just lose weight and you'll be fine."
>i just want to start taking control...
>not just with my own health...
>but i decided to dedicate my life to fight for our rights..
>not just us with PCOS but all of us that feel we have been let down by
>the politicians that get their paychecks from our taxes...yet, they
>don't listen.
>the same for the doctors that if it wouldn't be for the sick they
>couldn't afford their cars and homes and so on.
>sorry if i sound angry...
>but if i am going to have facial hair, depression, fatigue
>and all that good stuff, i want to make sure that i make some kind of
>difference...
>that way people remember me for dedication and passion...
>not a beard and acne.
>sorry...
>just needed to vent
>
>--
>val
>

Val, I think you've brought up a good point. I think the best thing we can do is not be ashamed of PCOS. After all, it ISN'T our fault. We didn't do anything to "get" PCOS. Yes, it is difficult and embarrassing to talk about. But, I think the more we openly discuss this syndrome, the more information will get out there, and in turn the medical community will HAVE to stand up and take notice. Plus, if we talk about it to everyone, then somewhere along the lines we will help someone get the diagnosis they need. The more diagnosis there are, the more doctors are going to have to study it. And yes, hopefully someday we can all participate in a "National PCOS Awareness Month" or something of that nature. :)

Love,

--
Jennifer Dean
Moderator of egroups/NashvillePCOS

Next message: Eileen: "Re: Metformin - Anyone get a rash/hives?"
Previous message: Anne: "Re: Men, me, and whether i can find it in myself to love who I am!"
In reply to: Val: "Is PCOS being discussed at all in the dept of health?"
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Reply: Skye: "Re: Is PCOS being discussed at all in the dept of health?"

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