Re: Had appt w/RE-PCOS research doc - new info - especially if ttc
From: anonymous (anonymous@obgyn.net)
Mon, 14 Aug 2000 12:23:55 -0500 (CDT)
Michele,
Wow....he sounds awesome! I'm so excited for you=) Best of luck!
BTW....can you post the three levels of PCOS...I would be curious to see
where I fit. I dont have "classic PCOS", my only syms are irreg.
periods and the old cysts on the ovaries. Other than that I'm tip
top!!! Just curious!!
Thanks and Again Best of LUCK!!!!!!
At Mon, 14 Aug 2000, Michele wrote:
>
>Well gals thought you'd like to know the info I paid $215 to get. Met w
>Dr. Craig a RE here in phoenix, who after meeting with him appears to
>be on the cutting edge with fertility treatment and PCO. He also has a
>very good understanding of the whole disorder regardless of fertility
>issues. Boy was this guy smart. Oh where to start, he said so much!
>
>First he told me that there are 4 forms of pco or stein leventhol
>syndrome. He said I have stein leventhol type 1 (SL1). He said you are
>classic pco. Just so you know my symptoms of SL1 are: Irregular
>periods, infertility, miscarraige, erractic BBT, low progesterone,
>delayed endometrial lining, ovarian cysts, elevated insulin, High blood
>pressure, high cholesterol, High LH to FSH, skin tags, unexplained
>weight gain, pain, fatigue, sleep disruption. He did not go into detail
>about the other 3 forms of pco, but I asked about those who have the
>hair and acne problems and he said that they have shadow something
>syndrome in addition to pco. I guess each form of pco needs to be
>treated slightly differently depending on which one you are.
>
>He also ordered a 17-OHP test, which tests the adrenals. We will retest
>my FSH to see if I still am producing eggs. I was a year ago. A liver
>function test for the avandia. Though he has not yet seen anyone
>develop liver function problems on avandia. He did say that it would
>cause 2-5 pounds of weight gain. But, the glucophage might counter
>that. He showed me how much larger my ovaries were compared to normal.
>OH HEADS UP TO THOSE OF YOU ON HIGH BLOOD PRESSURE MEDS. I am on
>NORVASC A CALCIUM CHANNEL BLOCKER, he said this kind of med keeps the
>sperm from fertilizing the egg.
>
>NOW ON TO TREATMENT!
>
>He said that I am responding well to the glucophage treatment. I am at
>500mg 3x/per day. He said that the 10 pound weight loss and 9 point
>reduction in my fasting insulin from 51 to 42 was right on schedule.
>(BTW for those of you suffering with start up symptoms from the met,
>most of mine passed after about 6 weeks, acted up again when I increased
>my dosage but most of that has now passed I have been taking it for
>about 3.5 months, my cycles have normalized, blood pressure is now
>normal, sleep like a rock, pain and fatigue have lifted, SO HANG IN
>THERE!)
>
>As I am ttc he said 1500 glucophage is the dosage that he wants me at to
>start, then possibly increasing it if necessary. THIS IS NEW - He said
>that he would like to add 4mg of avandia 1-2x/per day to the glucophage.
>He said he has had a lot of success with getting you to ovulate with
>this combination. He gave me the pills free. This is ovulating without
>fertility drugs - no clomid. At least to start. I bet it works because
>the two drugs together probably bring the insulin down faster. He also
>said that some pcos'ers are clomid resistant and that clomid can
>interfer with the sperm getting through the cervical canal. He said
>your chances of ttc are better if you add insemination if you are going
>to use clomid. So he basically showed me a step-up treatment program
>any of which I can jumped into to at any time. So next would be to add
>insemination, clomid, ultrasounds, HCG trigger, progesterone suppos.
>Then the big guns Follistime injections. Or I could skip all this an
>have a Ovarian Needle Diathermy to reduce my ovary size which then
>causes ovulation. If none of this works then the only option is the
>very expensive invitro fertilization and egg donor ($10-13,000). I
>doubt I will do invitro. Though if this guy can't help me get pregnant,
>then no one else will. Then I will except that I was not meant to have
>my own child. Oh he said that fertility treatment is still less
>expensive then adoption fees. But my hubby doesn't want to adopt
>anyway. So feel free to use this info how ever you like. Take it to
>your RE and see if they will use it as a treatment program for you. I
>will keep you posted if we concieve. Good luck to the rest of you gals
>ttc and congrulations to the newly preggo!
>
>--
>michele
>
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