Hey You!!
From: A (anonymous@obgyn.net)
Sun, 06 Aug 2000 23:56:31 -0400
Hey honey!!!
Had a greeaaatttt time the other night...I will tell you about it later though.
Also heard from the doc. It's too late to write it all now...have to get yp
really early, but I was thinking..maybe the three of us could geth together for a
chat this week before I leave for Canada. let me know & I will give you details
later!!
na-nite!!
lex
Theresa wrote:
> Hello all!!
>
> I received this in my email today...not sure how, I think it's from the
> SE Michigan PCOS Support Group Coordinator. Anyway, thought you all
> might be interested in reading it, and possibly participating...hell, we
> give enough blood anyway...might as well give it for a good cause. Maybe
> these people can figure out a way to cure this, so our daughters,
> granddaughters, etc. won't have to go through what we do now!!!!
>
> hugs to all~@theresa@~
>
> More info about the studies.
>
>> ----- Original Message -----
> From: Jimenez, <YJIMENEZ@PARTNERS.ORG>
> To: 'Paul LUSKIN' <pluskin@mediaone.net>
> Sent: Wednesday, July 26, 2000 11:51 AM
> Subject: RE: PCOS Research Study
>
> > Hello,
> >
> > Thank you for your interest in our study. My name is
> > Yarisie Jimenez and I am the research coordinator that is working with Dr
> > Taylor. I will be more than happy to give you information about the
> studies
> > that we are currently doing. If you have any questions please feel free
> to
> > ask. Here is a brief descriptions of all the studies. Let me know what
> you
> > think.
> > RESEARCH STUDIES IN POLYCYSTIC OVARY SYNDROME
> >
> > Dr. Ann E. Taylor
> > Massachusetts General Hospital
> > Reproductive Endocrine Unit
> > Contact person: Yarisie Jimenez, Research Coordinator
> > Phone #: (617) 726-5526 E-mail: Yjimenez@partners.org
> >
> > Thank you for your interest in our studies. To be eligible to participate
> > in our studies you must be off certain medications like birth control
> pills,
> > Anti-Depressants, and Seizure medications, for at least two months prior
> to
> > the admission date. The only study that can be done if you are taking
> > medications at the moment is the Genetics Study.
> > The Genetics Study: The purpose of this study is to investigate if
> > PCOS is an inherited disorder. It involves answering a medical
> > questionnaire and having blood drawn. You may have the blood drawn at a
> > lab/hospital local to you. Once we draw/received the blood collected for
> > DNA, a #/code will be assigned so that the donor remain confidential. When
> > or if a gene (s) is/are found that causes PCOS, participants will then be
> > able to have the blood tested for that gene. There have not been definite
> > PCOS gene(s) identified at this time. If you are willing to come into
> Mass
> > General Hospital, two other things that you can have done if you enrolled
> in
> > this study is an oral glucose tolerance test (OGTT), which will tell us if
> > you are insulin resistant or not, and a pelvic ultrasound examinations.
> The
> > ultrasound can be scheduled on any day or maybe the same day that you come
> > in for the OGTT test. If you decided to come into see us, we will do a
> > screening and a physical exam and we will also draw your blood to check
> the
> > hormones and your hemoglobin. If you are unable to come into the hospital
> > we could send you a package with all the information and the materials.
> You
> > can have your blood drawn at a hospital/lab local to you. I will send you
> > all supplies and a prepaid FedEx slip to ship the blood to us at Mass
> > General Hospital. We will also reimburse your lab for the cost of drawing
> > the blood. We would love to family members like parents and sibling to
> > participate in the study also.
> > The DHEA Study: This study looks for the effect of DHEA
> > administration on insulin sensitivity and pituitary hormone release in
> women
> > wit hyperandrogenism. It will help us understand the abnormal hormone
> > patterns and their relation to high insulin levels. This study requires 3
> > separate 24 hors admissions. You will be compensated up to $450 after
> > completing the study.
> > The Diazoxide Study: This study is to identify the role of insulin
> > in abnormal pituitary hormone release in women with PCOS. This study
> > requires two separated 24 hours' inpatient stays. At the completion of the
> > study you will be paid $200.
> > The Binge Study: The purpose of this study is to determine the
> > effects of binge eating on insulin and female reproductive hormones. This
> > study requires two admission of three and half day. The second admission
> > could be done anywhere from a month to a year apart form the first one.
> One
> > admission will be the Binge Diet, which means that you will have all the
> > calories, based on your weight that you normally eat during the day at one
> > meal at 6 PM and you will have an hour to finish it. The normal diet is
> > broken down in three meals and snack. The remuneration at the end of both
> > admissions is $500.
> > The Urine Study: This study compare urine hormone levels tests to
> > blood hormone tests. And this requires a 28 hours inpatient stay. The
> > remuneration for this study is $125.
> > The Lupron Study: This study is to determine the optimal suppression
> > of pituitary and ovarian hormones in women with PCOS. This is a 14-day
> > study. The 1st day you need to be her for 4 hours and will have the blood
> > drawn at different times. Then you will have to come back on day 7,10,14,
> > each time the visit is for 2 hours and you will have the blood drawn at
> > different time. Also while you are on the study you will have to take the
> > Lupron medication for 14 days (injection) and have daily blood samples
> > (which can be drawn at home if you choose or her at the clinic). All the
> > procedure will be free of charge to you. At the completion of the study
> you
> > will be remunerated $300 for your time and effort. You will be expected
> to
> > pay for your own parking and transportation costs.
> > One thing to keep in mind is that we will tell you the results of these
> > studies. You can combined some studies together to reduced the amount of
> > admissions.
> > Thank you for your interest in our research study.
> > I hope to hear from you soon
> > Take Care
> >
> > Yarisie Jimenez
> > Research Coordinator
> > 617-726-5526
> >
> > > -----Original Message-----
> > > From: Paul LUSKIN [SMTP:pluskin@mediaone.net]
> > > Sent: Tuesday, July 18, 2000 8:13 PM
> > > To: JEN
> > > Cc: Jimenez, Yarisie G.
> > > Subject: PCOS Research Study
> > >
> > > I wanted to let everyone know about a research study that is going on at
> > > Massachusetts General Hospital. It's a Genetics study involving blood
> > > samples and questionnaires from other family members. You can
> participate
> > > from Michigan! She can send everything right to your home.
> > >
> > > I'm participating, I just have been slow to meet up with my family!
> > >
> > > The study coordinator listed below is as follows:
> > >
> > > Yarisie Jimenez
> > > Research Coordinator
> > > Reproductive Endocrinology Unit
> > > Mass General Hospital
> > > 55 Fruit St
> > > Bartlett Hall Extension 5
> > > Boston, MA 02114-2696
> > > Telephone # (617)726-5526
> > > yjimenez@partners.org
> > >
> > > Please contact her if you are interested.
> > >
> > > Thanks,
> > >
> > > Jennifer Lay-Luskin
> > > SE PCOS Support Group
> > >
>
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