PCOS Messages for July, 2000: Re: Are there any special sites forums etc for those with SEVERE

Re: Are there any special sites forums etc for those with SEVERE

From: Avalos (anonymous@obgyn.net)
Mon, 31 Jul 2000 08:30:08 -0500

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Susan,

I just read your post and I am sending you huge e-HUGS.... I am sitting here at my desk, and you have brought tears to my eyes, I just wish I could stick myself in an email so that I could pop up in your email and give you a huge HUG....

Clara

-----Original Message----- From: anonymous@obgyn.net [mailto:anonymous@obgyn.net Sent: Sunday, July 30, 2000 9:20 AM To: Multiple recipients of list PCOS Subject: Re: Are there any special sites forums etc for those with SEVERE PCOS???

I'm sorry you feel that you don't quite fit in here. And, I'm also sorry but I DID take offense to your message. You see, this disease effects us all in different ways. Yeah, I have facial and body hair, hypoglycemic attacks, depression, I'm going bald, I suffer from anxiety attacks. These 5 things alone have "disabled" me to a certain extent. I only go out of doors when I have to go to work, because that 'little bit' of hair (which is a full beard) is just enough to make me feel like the world is staring me down. Those anxiety attacks that happen just whenever, scare the shit out me, to the point that I'm afraid to be out in public, what if I have one in front of everybody or while I'm driving my car? One symptom feeds the other and the other, and so on. They say if I get more exercise I'll feel better, both physically and mentally. I can't seem to get past the front door, though. Yes, I can see where over the past year or so how my legs have turned into mush from never getting out, I can feel the pains in my weak arms when I try to lift something that I used to could, but it is way too heavy now. It hurts my back just to sit in this chair for too long. My body has taken on the form of a lifeless rag doll. I can feel how my whole body is breaking down and how I feel absolutely powerless to do anything about it. I feel hopeless everyday. I wish I could smile more. I wish I knew what it felt like to be 26 and happy. But I don't. PCOS has robbed me of that feeling. PCOS has crippled my mind. I come to this board everyday, I read every post. This board, in a lot of ways, is the only hope that I have. I'm sure most of the women here do suffer to some extreme or the other like me. And like me, they try to keep the board as positive as possible. I'm already depressed enough, I don't want to come here and get more upset. I don't come here groaning everyday because I feel like crap, but just in case it makes you feel better, I do. Instead, I read what has helped others, I try to apply it to me because I want to feel better, too. They are right about the exercise, I know it isn't much but I actually went out and walked around my neighborhood twice last week. Maybe I'll go again today. In time, perhaps I will be strong again.

I have found several boards on egroups.com that relate to specific areas of PCOS, I wish you luck.

Susan Steinman

At Sat, 29 Jul 2000, anonymous wrote: >
>I am finding I dont relate to a lot. I almost cried when I when on this
>one board--not this one where all the women all were worried about
>having babies. I am tired of having this disease just seen as an
>infertility issue. It has disabled me. Its hard to see women
>devestated by a little facial hair when I am suffering such extreme
>symptons. I am finding I am having a hard time relating. I have my
>doctor do a multitude of tests because my PCOS is so severe I didnt
>think it was PCOS but an adrenal tumor. However he just reinforced the
>PCOS diagnosis and told me it was PCOS. Ive been hanging out on
>Cushings boards because I feel like I relate to their level of sickness
>more---I LIKE YOU ALL Dont take this the wrong way...this board has many
>kind nice wonderful people on it...I just feel like Im on a board for
>the wrong illness or something! like how a pancreatic cancer patient
>would feel on a board for diabetics or something.......Ive gotten better
>on aldactone...like a miracle drug to me.....but its hard because I feel
>so out of touch.....Ive had another severe sufferer tell me when she
>sees women on here cry about a little facial hair it makes them want to
>cry because they are trying to just live day to day and feel so badly.
>This applies to me too. So if anyone has any ideas about any sites that
>apply to SEVERE pcos I would welcome those ideas.

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