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Re: Severe PCOS and medical oneupmanship...LONG

From: Jennifer (anonymous@obgyn.net)
Mon, 31 Jul 2000 07:28:11 -0400


Donna, Your post was very profound and well put. I hope there is something that is found soon to help your daughter, because I know exactly what she is going through and it isn't something I would ever want any teenager to go through. Thank you for putting your thoughts on the board. ---Jennifer

>----- Original Message -----
From: donna <anonymous@obgyn.net> To: Multiple recipients of list PCOS <anonymous@obgyn.net> Sent: Sunday, July 30, 2000 9:09 PM Subject: Re: Severe PCOS and medical oneupmanship...LONG

> I've been reading and posting here for about 5 months. I do not have
> pcos but my 17 year old daughter does (some of you probably remember the
> story: bad treatment and ended up in the hospital with blood
> transfusions). I learned more here in such a short time than any of my
> other quests.We are now armed and ready to face the medical
> profession!(One of the drs. in the hospital, a resident , said , when I
> asked , that pcos was a trashcan for a lot of unrelated symptoms.)The
> women who post here are intelligent, well informed, funny, and willing
> to share their experiences and knowledge to help all of us. Fertility
> is not now an issue for my daughter but someday it will be and it IS a
> part of pcos and by reading those posts we are becoming more informed.
> My daughter does not yet have a problem with hair loss and growth but if
> left untreated she will. Does that make her pcos less severe? Maybe to
> some of you, but maybe thats not the same perspective of a teenager who
> gained about 160 lbs in a couple of years and went from an outstanding
> student to just getting by because of all of the other physical and
> emotional issues involved. Whining about whose case is worse is
> ridiculous and whining because some particular issues are more important
> than others to some is equally stupid!! I do not feel that there is too
> much emphasis placed on one aspect over another, all are important and
> if one post isn't to your liking then scroll on or just pick a thread
> and go through the archives. Severe???? Whose case isn't??? The woman
> who weighs 350 lbs but still has a period a few times a year??? How
> about the woman who was just diagnosed with Type II diabetes??? Or maybe
> my 4th grade teacher who had a fairly elaborate upsweep to disguise the
> baldness??? Or do we categorize by the numbers??? Or how about by our
> drs. definition- maybe that would depend on how many pcos patients they
> have or on their education??? Face it, pcos is a lousy thing to have, it
> invades your life and tries to take over, but so do a lot of other
> diseases. Life ain't fair but it sure helps to know that all of you
> know how it feels and are caring and empathetic even if the world isn't.
> So- get over it! We all get all the whining and misunderstanding and
> ignorance out there!!! Have a great day :)
>




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