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From: Linda (anonymous@obgyn.net)
Fri, 21 Jul 2000 08:32:11 -0500


>
>Let me just say this sucks. Ok with that done yesterday I was
>officially diagnosed as having PCOS. I'm 23 and have been battling with
>irregular periods since I was 15.

Yeah, it does suck. I'm 41 and have suffered from PCOS since my very first period at 11. My life with PCOS has pretty much paralleled all the medical discoveries with the disease. That is to say, I've been dealing with all the problems for 30 years and getting treatment for the symptoms but not the core problem (until recently).

I remember what it was like to deal with PCOS in high school, college and grad school. It wasn't easy. But thanks to parents who built my self-esteem, I was able to persevere. I had a good group of friends who cared for me as a person, not as my body parts. In fact, I'm still very close with that same group of friends and have recently shared with them my story of PCOS, helping them to see what I've been going through. They, and my family, have remained very supportive throughout.

>
>I'm feeling terrible. I'm overweight and hairy. I've never dated
>anyone because I've never liked my body enough. I have a low self
>esteem because of the weight and hair. I just sort of hide away from
>the world and wait for it to go away.

Don't let this disease rob you of your life! That's been my mantra. An "I can do anything" attitude will generally get you to do anything. I got a law degree and practiced law (I'm on another career now). I was a Daisy and Brownie Girl Scout leader; sure, I had to answer some questions from the girls, but it's part of their maturing to learn that not everyone looks the same and that we're all part of HIS children. I taught Sunday School and sang in plenty of choirs. I took my nieces and nephews to museums and zoos and concerts. I began quilting and 20 years later I'm still quilting.

Anyone who won't be your friend or date you because of your looks isn't worth the time of day. I met a man nearly 16 years ago and knew from that very moment I'd spend the rest of my life with him. (It took him a little longer to come to the same conclusion!) We've been married for 11 years now. He realizes that the body is only the vessel, but the true person is inside. He accepts me for who I am, and I do the same of him. He has struggled with me through this whole PCOS thing and is greatly supportive.

All humans live with some form of disability. Some are visible, some are not. Our picture perfect culture doesn't allow for this reality, but we can't allow the culture to control our lives.

--
Linda



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