PCOS Messages for March, 2000: Re: Future success for teens with PCOS

Re: Future success for teens with PCOS

From: Belle (anonymous@obgyn.net)
Fri, 31 Mar 2000 18:18:50 -0600 (CST)

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In reply to: Susan: "Future success for teens with PCOS"

I am not sure of the "varying rates of recovery" that you are talking about. PCOS seems to be caused by a problem with insulin. This is a chronic problem. It does not go away on its own. Our problem is related to diabetes and if left untreated may turn into diabetes. I understand your reluctance to use a long term medication but the truth is that with PCOS we have between 40 - 60% chance of developing diabetes and all of its horrible side effects : blindness, infections, amputations, depressed healing rates, etc. We also have a much greater chance of having a heart attack and of having endometrial cancer. Many of us have learned the hard way that symptoms increase with age. We may not all have the same symptoms but they continue even after menapause. Your daughters also stand a good chance of having difficulty concieving.

You feel that you have had this since you were 13 or 14? Why didn't your OBGYN pick up on it. We have great difficulty in finding drs who take this seriously. It sounds like your OBGYN may be one of them. Very few of us have had success with getting help from our OBGYNs. I think I know of 3 and I am one of them. Endocrinologists seem to be our best bet.

A change in diet can certainly help. It may slow down some of the problems that your dau is having but it will not stop them. The way to prevent from getting improper medications is to research the information yourself and do NOT take the dr at his/her word. They may act as if they have taken a deity class but they have not.

I myself have a 13 year old who has already been diagnosed with insulin resistance and PCOS. She had previously been diagnosed with asthma and at one point was taking 9 different drugs every day, some of these were steroids. She has been taking multiple medications for over half of her young life but if that is what it takes to make her healthy, that is what it takes. I cannot imagine putting her at great risk for death under any circumstances. Granted asthma will kill you more quickly than PCOS, but I do not want to risk permanantly damaging any of her internal organs.

At Fri, 31 Mar 2000, Susan wrote:

>I realize now that I have suffered with this since the age of 13 or 14
>years old. It is also now obvious to me that my 16 yr. daughter has a
>raging case of PCOS. Over the past year she has gained about 30 lbs. no
>matter how hard she has tried to keep it off. She has severe symptoms
>of every kind. I have made and appt for both she & my 14 yr., who has the
>beginning signs of PCOS with our OBGYN, but frankly, looking at the
>varying rates of recovery leaves me worried for their future. My 16
>year old had precocious puberty at the age of 7 yrs. and her symptoms
>at this age are far worse than mine ever were. If we catch these things
>before they are full-blown (my 14 yr. old) is a change in diet
>sufficient to slow the effects or is it considered reasonable for a
>child that age to be on medication? I am extremely wary of long term
>meds, as I have seen my mother's health destroyed by improperly
>prescribed medications for her Rhemutoid Arthritis & Fibromyalgia. I am
>greatly concerned for my 16 yr. old, because it is now clear that she
>is very ill.

-- Hope this helps,

Belle

Next message: Paula: "PCOS Conference to Feature Toni Weschler, Author of Taking Charge of Your Fertility"
Previous message: anonymous@obgyn.net: "Re: Provera ... I need some answers ... I am frustrated"
In reply to: Susan: "Future success for teens with PCOS"

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