PCOS Messages for March, 2000: Re: WHAT SHOULD I DO?

Re: WHAT SHOULD I DO?

From: Molly (anonymous@obgyn.net)
Sat, 25 Mar 2000 08:26:23 -0800

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Sallie, could you tell me the name of the Medscape article about adolescents and PCOS and IR? Let me update you on Rachel, my 16 year old. (Background: she had always been thin. After stopping the birth control pill, a year ago she went from a size 3 to a 12 in a few months. Body hair growth escalated, along with hair loss on her head, insomnia, etc. Finally, after 4 doctors in San Diego missed it, we went to Tucson, saw Dr. Elizabeth Vliet, who instant;y diagnosed her with PCOS from her blood work. Started Ovcon35, spironolactone in August, metformin in October (after the GTT/Insulin test). In January she went to 1,500mg of met.) Now the good part: Her body is returning to normal. She has lost 15 pounds since January without following a strict diet. She watches her carbs and always puts protein with any food. She has always exercised. All of a sudden, the weight if just coming off. Hair growth is way less. Texture is softer. Complexion is flawless. I am convinced that this all happened with metformin. It didn't help right away. She went up very slowly but it took the therapeutic dose to do it. I had heard Dr. Nick Cataldo speak at the Oregon conference in October and he told me that less that 1,500mg probably wouldn't help her. Rachel and I went to San Jose to hear him again at the San Jose Chapter meeting in December (thanks, Heather!). It helped me push to get her to 1,500mg, which he says is the therapeutic dose. I realize that metformin might not help everyone- I've heard 50% of the people- but it has helped her!

(By the way, she is on the Ovcon35 birth control pill because she has very low estradiol and this is the best way of replacing it for her. It's a very good pill. We have had some glitches here, with breakthrough bleeding, pain, etc that we are fine tuning.)

Take care! Molly

-----Original Message----- From: Sallie <anonymous@obgyn.net> To: Multiple recipients of list PCOS <anonymous@obgyn.net> Date: Saturday, March 25, 2000 6:17 AM Subject: Re: WHAT SHOULD I DO?

>I don't understand your concern. Are you taking the metformin? Is it
>helping? What is your dosage? I wish I could find a doctor that would
>prescribe metformin for my daughters without having to test for insulin
>resistance. The insulin resistant test can be misleading or inaccurate
>and it is ideal if the doctor will prescribe it based on symptoms of
>PCOS and insulin resistance. Most labs or doctors are not familiar with
>testing for insulin resistance to begin with.
>
>How was he mean? Maybe you just need to tell us more. If metformin is
>not working - have your cycles returned?.. then are you wanting a
>higher dosage. If you are taking the metformin .. I think you would
>need to come off of it to test for insulin resistance since metformin
>corrects insulin resistance.
>
>If he prescribed metformin based only on the fact that you have PCOS
>then more power to him. I just read on MEDSCAPE a very lengthy
>consensus report by the American Diabetes Assocition that adolescents
>with PCOS should be considered synonomous with Type 2 diabetes. This is
>exactly the consensus or "line of thought" that we need amoung doctors.
>
>--
>Sallie
>

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