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Re: PCOSFrom: anonymous (anonymous@obgyn.net)Thu, 16 Mar 2000 15:06:56 -0600 (CST)
At Thu, 16 Mar 2000, Pamikins wrote: > >After many years of frustration and embarassment I think that I have >finally found out what is wrong with me. For most of my menstruating >years I have had these symptoms. I have not been formally diagnosed >yet. I have my first appointment tomorrow to see if this is the case. >The doctor I have been seeing doesn't seemed concerned with this at all >as he is not much concerned with my fibromyalgia either. I would like >to know what some things some of you ladies out there with this went >through just before and after diagnosis. I have been to several doctors >throughout my life for this problem. I suffer from heavy irregular >bleeding so bad that it literally runs down my legs. I have so much >body hair it is embarassing to wear certain clothing styles. I have had >a paunch in the middle no matter how little I weigh. I have had doctors >to ask me about the excessive body hair before and when I say I have had >it all my life that it just got darker with puberty they drop the >subject. When I was a teen my doctor suspected ovarian cysts however, >my mother was so hung up on my virginity she didn't let the doctor do >any exams cause that would damage the hymen and any prospective husband >later would not want me if he thought that I wasn't a virgin. So, for >all this time I have endured this mess. It has finally gotten so bad >that coupled with the fibromyalgia and syncope that I can not stand up >when I am having menses. I stay dizzy and light-headed that to get >around that I have to hang onto fixtures and furniture to go from room >to room. Reading about this last night literally brought tears to my >eyes as it did reading on fibromyalgia years ago. I have something to >go on as to what is wrong with me. If this is what I have it makes me >mad that years ago I could have possibly had it rectified and not have >all these maladies from which I now suffer. The menses problems, blood >sugar, hair everywhere and so on. Thank you for allowing me to have my >input here even if I don't quite yet know if I have PCOS. > >-- >Pamela Moore aka Pamikins > Hi Pamela, Wow! It makes me feel so not alone anymore to hear your story. I, too, have beared lots of body hair, severe acne, sugar addiction, pain in my pelvic, really dry skin, overweight and sleep problems. I just found PCOS and literally feel like crying with relief myself. I have been searching everywhere for a knowledgeable doctor and have been having a very difficult time with their receptionists. The people who answer the doctor's phones have alot of power so it is important to be very clear about what you want and need from the doctor. Of course this intimidates most of them but the knowledgeable professionals seem better equipped to handle us. Yet, I'm still looking for that one professional in my area. I can't afford to go to every doctor because I have no insurance and because of all my symptoms I have been told by many insurance companies that I would be a maximum risk client, therefore, paying extremely high monthly payments. So I pop my Prozac and function at a basic level--taking each day at a time. It's an awful way to live and knowing that other women are in the same boat somehow morbidly speaking, makes me feel better. Your mother probably thought she was doing the right thing. I bet, though that you have alot of anger towards her. I was raised in Christian Science--no doctors, dentists, medicine, no discussion of physical ailments except for "mind over matter" talks. I was "told" that I was normal by my mother whenever I complained about being different. Ignored, in pain, alone, I somehow endured adolecense as my body got hairier, acne flourished, one period a year maybe two--irregularity, and so much more was going on. Anger? yes, of course. That's why this discussion forum is so good for us. Have you read about the mothers and grandmothers concerned about their teen-age daughters--? nice, huh? Anyway, somehow it helps me get over those rough emotions I have towards my mother. Oh, we girls and our mothers! Hope youcan get a diagnosis so you can get on with life, and me too.
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