PCOS-MEDICATION Messages for August, 2003: Re: Am losing it with my PCOS

Re: Am losing it with my PCOS

From: anonymous (anonymous@obgyn.net)
Tue, 19 Aug 2003 11:47:42 -0500 (CDT)

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Reply: Rachel: "Re: Am losing it with my PCOS"

Hi, I am not a doctor... but I have been in treatment for PCOS for 10 years. What is really tough is that sometimes when one thing is working, your body will just change a bit and then you have to re-work all of the meds, and routines again. I would skip the GYN on this one and go straight to a reproductive endocrinologist. My endocrinologist is my "main" doctor. I see other doctors for other needs (a dermotologist, an OBGNY, a nutritionist, an eye doctor etc) but the endrocrinologist, is in charge of my PCOS. It is impossible to take care of yourself when you have too many different people telling you what you should and should not do. I was at the OBGYN yesterday for an annual check up and she asked me how the PCOS was going. I told her about my treatment (2500mg Metformin, 1 hour per day at the gym with heart rate at 155 or above, no bread, no pasta, no candy- I am NOT saying I am perfect every day... but these are my daily goals!). She said that all sounded great and wished me luck with my weight loss. I was really impressed that she did not try to get her "two cents" in. She did not even comment about the fact that I am 50 lbs overweight. I told her that I wanted to get pregnant in the next year and she said that she said she was glad I had a real "pro" on my PCOS case (my endo) and that I should call her when I get pregnant. She gave me an Rx for pre-natal vitamins. The fact that she recognized that that was not her area of expertise really impressed me. She did say that if I ever needed a new endo (closer to home) that she could help me find one. I really like my endocrinologist and am very happy to have him in charge of my PCOS. He lives in my parents hometown- 1,000 miles away from where I live, but I get back there twice a year and always see him when I am there. I guess what I am trying to say is it might help you to choose your "pro" on PCOS and listen only to them for a year. Make sure it is someone who has treated hundreds of women with PCOS. Ask them when you see them the first time. Even with my secondary doctors and providers I always make sure that they know about PCOS. For example, when I was looking for a trainer at the gym, I interviewed 3 women trainers and chose the one who said she had had lots of PCOS clients over the years and knew what I was up against. She is not playing any part in my treatment really- but knowing that she understands what I am going through makes my trips to the gym a lot more pleasant.

I hope this helps. Helen PS. My trips to the gym are the biggest part of my treatment. Just walking for 30-40 minutes a day can make a world of difference to how I feel. If I miss a day at the gym, and don't even go for a walk, I feel terrible. I don't like working-out really, but I know that if I don't, my body is completely out of control internally. Have any of your doctors suggested going for walks?

At Fri, 15 Aug 2003, Rachel wrote: >
>I am needing some serious help here! I was diagnosed with PCOS three
>years ago, put on the pill, not put on any other meds and nothing
>helped. I got a second opinion one year ago, had more tests run, and
>was put on Glucophage, Aldectone, prometrium for my periods, and told to
>eat the carb addicts diet. Same dr. two months later put me on an even
>more strict diet and upped my glucophage because I was still gaining
>weight, irregular periods, etc. Still gained weight; went back and got
>put on the strictest diet known to man and was "shuttled off" in my
>opinion to a dietician (my last four appointments haven't even been with
>the doctor, just the dietician). This dr. is supposedly the forerunner
>in my area in PCOS treatment. Went to a third dr. after getting
>frustrated with the first two; told me I may not even have PCOS, told me
>to quit smoking and lose weight and I would be fine. I have been told
>to go on Atkins, Sugar Busters, I'm borderline diabetic, I'm not
>borderline diabetic, eat fruit, don't eat fruit, blah, blah, blah . . .
>the list is endless. I cannot eat sugar alcohols, so going completely
>sugar free is difficult, eating strictly low carb makes me stomach sick,
>my stomach is chronically messed up, and I mean to the point of
>interfering with my ability to even leave the house. My periods were
>regular for about nine months on the prometrium, but are now back to
>complete whacko and out of control. Oh, and to top it all off I have
>been trying to have a baby for about four years now, have taken Clomid
>and all of that whatnot, fertility monitors, sperm tests, everything
>that takes the "fun" out of conception, and nothing. I am so
>frustrated! I have gone from shocked and stunned and hopeful to just
>downright angry! I'm twenty pounds heavier than I was when I started
>getting "treatment", and my body is still totally out of my control.
>Does anyone have any suggestions? I've thought about forgoing the
>gynecologists and heading straight for the endocrinologists, I'm
>pondering putting myself in clincial trials, anything to get this stuff
>right. If it wasn't for being terrified of becoming diabetic, I would
>just throw my hands in the air and forget all of this! I would really
>appreciate some thoughts and suggestions from anyone.
>
>Thanks!
>
>--
>Rachel
>

Next message: anonymous: "Getting really frustrated!!!! PLEASE HELP!"
Previous message: madie: "Metformin questions"
In reply to: Rachel: "Am losing it with my PCOS"
Next in thread: Rachel: "Re: Am losing it with my PCOS"
Reply: Rachel: "Re: Am losing it with my PCOS"

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