PCOS-MEDICATION Messages for June, 2003: Re: My daughter was diagnosed with pcos at the age of TEN .

Re: My daughter was diagnosed with pcos at the age of TEN .

From: ann (anonymous@obgyn.net)
Sun, 29 Jun 2003 21:22:25 -0500 (CDT)

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At Thu, 27 Feb 2003, Anon wrote: >I have two daughters with PCOS. What I wanted to respond to however, is that one of them developed "arthritis like" symptoms. Turns out she went into full blown lupus which months and months and injections later we learned was drug induced. SPecifically, she was on dynacin for the ACNE and a rare (14 in 100,000) side effect is the development of rhematoid arthritis or lupus. I caution you to explore further, maybe with a rheumatologist. My daughter stopped the dynacin (an anitbiotic) and all lupus symptoms went away!
>Hi,
>
>My daughter was dx at 8, so it's not that unusual. I think it would be
>very good for your daughter to see a pediatric endocrinologist who
>specializes in childhood diabetes. Perhaps you might find one who
>treats pcos. My daughter started glucophage at 8 years. BCPs are not
>good for pcosers and are very bad for children, she needs to see a
>specialist. Some physicians try Lupron to stop ovarian function and
>slow down puberty, others are using insulin sensitizers like metformin.
>You and your daughter need to do some serious reading and get educated.
>You are in charge of her health care and you need to know what her
>options are. It is your right to research and demand proper treatment
>for her. Start reading! Search online, read all the articles in the
>pcos section and she could visit pcoteen to chat with her peers. Good
>luck!
>
>>My daughter was diagnosed at 10, doctor laughed at me when I wanted her
>>tested, but all her test came back positive, ultrasound, blood hormone
>>levels, and bone age x-rays. I was told that she was the youngest to be
>>diagnosed, specialist didn't even know how to treat her then. We waited
>>a year after she started menstrating which was 11yrs old and she was
>>first put on birth control pills but had side effects. She was just put
>>on aldactone, for severe acne. Can anyone tell me what side effects
>>that they are having due to this medication.
>>Also my daughter has been having pain in her hands she said they feel
>>swollen, this has been going on for a year, it's hard to get anwsers.
>>One more question, does anyone know if this effects the muscle groups,
>>my daughter plays competitive soccer and she pulled her adductor ( groin
>>muscles)
>>they don't want to heal and no one knows why. Does anyone have any of
>>these symtoms. Sorry for so many questions, I am new to this and lost.
>>Thank You,

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