PCOS-MEDICATION Messages for March, 2003: Re: Any other UK sufferers???

Re: Any other UK sufferers???

From: Lara (anonymous@obgyn.net)
Tue, 18 Mar 2003 15:02:48 -0600 (CST)

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In reply to: LisaLQ: "Re: Any other UK sufferers???"

Hi Petra I have had pcos diagnosed for the past 10 years and am also in London. You are absolutely right and I have said before on this forum that the uk is far behind treatment compared to usa I have been on Dianette for 8 years - tried metformin alone 1000mg daily for a whole year and had NO periods plus excessive weight gain and hirsutism. So went back on dianette - with dianette the body hair does not disappear but becomes softer and I lose weight on dianette and feel much better. Also my acne clears up and is much better - of course u also get a monthly 'bleed' The only down side is terrible migraines esp around the time of bleeding - they are totally disabling - I have to hide under the duvet in a dark room for 2-3 days and am constantly taking Migramax for this. You cannot work / study / do anything during this time - it is severe migraine. There are so many drugs like spironolactone and actos and others mentioned on this forum that are NOT given for pcos in the uk All they do is put u on the pill until u want a baby.

Many people here on the forum say that glucophage is much more effective than metformin even though the ingredient is exactly the same in both - metformin. I am still on dianette but am considering giving glucophage a try in a higher dose but am a bit reluctant to come off dianette as it CONTROLS (not cures) most of the pcos symtoms at least 50% hope this helps your question we are far behind in treatment here in the uk!!

>At Wed, 12 Mar 2003, Petra wrote:
>>
>>I live in the UK and I haven't heard of half of the treatments people
>>are mentioning. I have been offered metformin which made me ill (I see
>>now that should have been predicted!) The Doctor took me off that and
>>just left me on dianette. I was recently discharged from outpatients -
>>not because I'm miraculously cured but because there was nothing else
>>they could suggest. They told me to just keep taking the dianette until
>>I want to get pregnant.
>>
>>Anyone in the UK (particularly London area) got any suggestions? I
>>really would appreciate anything anyone can suggest.
>>
>>Thanks.

Next message: Micha: "Re: pcos and wanting to get pregnant"
Previous message: Sandra: "Re: Breastfeeding with PCO"
In reply to: LisaLQ: "Re: Any other UK sufferers???"

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