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Re: need advice-don't know what to do now??From: Angie (anonymous@obgyn.net)Thu, 26 Dec 2002 14:03:44 -0600 (CST)
At Tue, 24 Dec 2002, Melissa wrote: > >I am 29 years old, and have been suffering with pcos since i was 16/17. >I am lucky enough to have a 6 year old daughter but the doctor can't >explain it. I am at my wits end with this disease. I go months with >heavy bleeding, yet the doctor tells me to take fertility drugs, what's >the point when my husband can't come near me anyway?? I am noticing more >and more symptoms, and I am becoming more and more depressed. It is so >difficult as I'm sure you know to function, and everyone around you just >expects you be energetic and happy. It is creating distance in my >marriage as I am extremely moody. I don't want to go the rest of my >life over-weight and feeling ugly. If anyone would kindly share thier >story with me I would greatly appreciate it. I really need someone who >understands what we go through on a daily basis. Thank-you for reading >my story. I wish the best for everyone going through this. > >-- >Melissa Melissa, I too have been struggling with this disease. I have been having this problem at 16/17 and now I am 32. I do not have any children. My husband and I had put it off early on because we wanted to get our careers firmly on track. Melissa, I have tremendous depression too. I am overweight and have some self esteem issues as well. For me I have found that praying about my problem, concentrating on the wonderful things I have around me, and talking with family members help. You are lucky to have a child already. This could be the first thing to be grateful for. I may never have any children because my condition has been undiagnosed for so long.
Unfortunately husbands have a hard time understanding a "normal" women
much less one whose hormones are out of whack. I have trouble with my
mood swings and lashing out at my husband because he is the one with me
most. When I am feeling "crazy" I think of something that I like to do
and I get off by myself and do it. When I am feeling better I go home
and talk to my husband about how I am feeling nutty. We have started
making a joke about it. Whenever I am taking a new hormone and I act
mean to my husband, he will hug me and say you must be on your nut
medicine. We laugh and I feel better. My husband at first had a hard
time understanding my feelings. We have been together nine years,
married 5. Try to put yourself in your husband's shoes. It will make
you be "gentler" on him and you will be able to talk with him without
getting upset. Honey always attracts more flies than vinegar.
> Melissa, you must take control over your own treatment of this disease. Doctors are looking at it from a technical aspect. If you feel your doctor is not giving you patience, understanding and knowledgeable advise, then go find someone else. Keep changing doctors until you find someone who will listen to you, who is knowledgeable enought to TELL YOU what's going on and who is specialized in this area. I have gone to many doctors who say they are knowledgeable in this area. Many refused to listen to my symptons and some have even said that I have emotional problems. I did not believe this. I have found a wonderful doctor in Tampa Florida. He has been on the right track with me from the first meeting. He spends time telling me what my body is doing and what my body should be doing. He has run many tests to eliminate other problems and he is very kind in regards to how I feel emotionally. He and my endocrinlogists have been working together. They are in the same physician group. I also learned that I have a thyroid disorder. I have heard a lot of women who have this also have a thyroid disorder. This curtails some of the weight gain. Check to see if you need to test for this. Hang in there. You are not alone. Try to get out of bed every day and say I am not going to let this control my life. Everyone has burdens they must carry. My mother-in-law has MS. If this is the only thing I ever have, it is still better than my poor mother-in-law. As for children, God will give them to me if it is in His will. If not, there is a child out there that needs a good mother. If you live in Florida I can give you my doctor's name. I will pray for you
-- Angie
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