Re: PCOS MISDIAGNOSIS
From: Suzanne (anonymous@obgyn.net)
Mon, 23 Dec 2002 21:30:34 -0800
I am happy you have such good news....but please bear in mind that RE's
often do not know ANYTHING current or relevant about PCOS....I have seen
many and also gyns. over the years, probably about 10...and was not helped
until I saw Dr. Katherine D. Sherif in Philadelphia at The Center for
Polycystic Ovarian Syndrome....she is the area's leading expert on PCOS and
one of the country's leading experts also. Dr. Sherif is a specialist in
Women's Health and PCOS and is a board certified internist....so a woman
does not need to see a RE to be properly diagnosed and treated. Since being
properly treated I have lost 70 lbs. have reg. periods, my hair stopped
falling out and new hairs where I DON'T want them have stopped growing. I
have more energy than ever. I personally had no luck with any RE I ever saw.
Just my opinion, ladies....Suzanne
>----- Original Message -----
From: "Amy" <anonymous@obgyn.net>
To: "Multiple recipients of list PCOS-MEDICATION"
<pcos-medication@mail.medispecialty.com>
Sent: Monday, December 23, 2002 5:16 PM
Subject: PCOS MISDIAGNOSIS
> To all of my "cysters"-
>
> This will likely be my last post to a PCOS forum. After being diagnosed
> twice by OBGYN's, who were basing the diagnosis on the fact that I
> didn't have a normal period from 4/01 - 10/01, I finally decided to go
> to an R.E.
>
> I just got home from my appointment and I am elated! Based on the fact
> that I have had periods that you can set you calendar by and after
> looking at my ovary ( I lost one to a HUGE, Dermatoid (?) cyst 9 years
> ago, and had RT ovary removed) I have been told that I am as fertile as
> anyone!!!! This is the greatest Christmas gift I have ever gotten! What
> my point of the post is is this...MAKE SURE THAT YOU HAVE A DIAGNOSIS W/
> A REPRODUCTIVE ENDOCRINOLOGIST before you believe you have PCOS,
> especially if you have never tried to concieve....
>
> I have been depressed, sad, unhappy, etc ever since getting this
> diagnosis, and today I was set free. They of course are doing studies
> on my blood, etc. but I am sure now that the first diagnosis was wrong.
>
> I still know what you are going through if you have PCOS, because for
> all intents and purposes, I did have it since 11/9/01.
>
> Please, heed what I say and get it checked out by an R.E. Its amazing
> when you put something down,you realize how heavy it was.
>
> To those who were correctly diagnosed, my prayers are with you....Good
> luck and God Bless.
>
> AMY
>
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