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Re: Hopes shattered by a prominate PCOS doctor (kinda long, sorry)

From: kim (anonymous@obgyn.net)
Mon, 25 Nov 2002 07:52:21 -0500


Hi, (I don't know your name)

I am so sorry that you had to experience that with the doctor.

I have suffered with pcos/ and related disorders since 11,  I am almost 34.

I was finally dx at 19 and told I might need some help getting pregnant and that was it. I kept going to the doc with tons of problems and was told it was all in my head.

Since then I have seen over 20 specialists had genetics testing/chromosomal testing clotting testing, a lap, HSG and ovarian drilling , and all the regular tests and procedures. I have had 7 m/c in 7 years all with IF meds. Still no baby.

Everyone is so different and the most complicated women (that what I am told all the time - I am the worst they have ever seen) take a lot more time and money and patience.

It is NOT an easy road, but, it can be ok if you keep trying to find the help you need. I am still trying to do that myself.

You are not alone - a great website is www.soulcysters.com great support and info.

HTH




      KIM(30 SOMETHING)dh SCOTT- JUST A BABE AT ONLY 30 
 
 
DX - PCOS/IR, hyperinsulinenmeia, thyroid failure, depression, infertility with repeated m/c.
7m/c's . TTC#1 - forever!!! Last 7 years straight with IF meds till May 2002. Finally O'ing with met alone!!Waiting till Nov 18th for repeated m/c testing results.
 
Meds - Metformin 2500, synthyroid, wellbutrin, 81mg asprin, 1mg folic acid, vitamens C&E&daily.
 
 

 
 
 
 
 
 
 
>From: anonymous@obgyn.net (anonymous)
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list PCOS-MEDICATION
>Subject: Hopes shattered by a prominate PCOS doctor (kinda long, sorry)
>Date: Sun, 24 Nov 2002 20:02:02 -0600
>
>First of all, I have been diagnosed with PCOS for about 3 or 4 years,
>though have suffered the effects since puberty. I have all the classic
>symptoms: obesity, excess body hair, infurtility, acne, etc.. and have
>had an ultrasound which confirmed that my overies were polycystic. After
>the intial diagnosis 3 years ago, I was put on birth control pills and
>Glucophage XR 1000 mg/day by a reproductive endocrinoligist. Two years
>have passed since being put on the meds and I have seen no positive
>results and have actually gained weight. At the urgeing of my family, I
>decided to make another appointment. The endocrinolist who I saw two
>years eariler had moved and I made an appt. with another doctor at the
>same health facility. The dr. I was going to see is VERY respected and
>(from what I gather) is one of the formost experts in the country in
>PCOS. I was very excited to be able to see him and held hopes that
>maybe he could help me. Imagine my absolute horror when he said that I
>was basically beyond hope, that I would never get under 200 lbs unless I
>became "a marathon runner and anorexic" and that basically I should
>enjoy my shortened lifespan as much as a could (He was entirely
>serious). Trying not to breakdown and cry in his office, I jokingly
>said "Well, it's a long, hard road out of hell" He just looked at me and
>said that my long, hard road was through hell. With my genes, I would
>never actually make it out. He did say that they could run some blood
>work and put me back on Glucophage XR but that it was probably a waste
>of my time and money. It was very apparent that he didn't care if he
>ever saw me again. His attitude during the whole visit varied from
>ampathy to outright contempt. I was glad my sweet husband was waiting
>for me after I got out. As soon as I got into the car, I burst into
>tears. I have been constantly fighting severe depression for the last
>five years and this really didn't help. I don't know what to do now. If
>one of the leading national doctors in PCOS has no hope for me, why
>should I even bother to continue this fight. I pray to God that no one
>else has to go through the kind of self-esteem shattering, humiliating
>doctor's visit that I endured.
>
>



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