PCOS-MEDICATION Messages for November, 2002: Re: Hopes shattered by a prominate PCOS doctor (Long response! :-)

Re: Hopes shattered by a prominate PCOS doctor (Long response! :-)

From: Sally (anonymous@obgyn.net)
Mon, 25 Nov 2002 01:27:24 -0600 (CST)

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Hi,

I am soooo sorry to hear of your experience. That Doctor ought to be shot! I mean it. What right has he got to treat you like that? None. No human has got a right to treat another like that - particulalry not a doctor to a patient. If I were you, I would make a formal complaint to the medical board about his behaviour.

Now, do not take that Drs words to heart. He is not correct - no matter how 'prominent' he is, he is wrong. There is DEFINITLY advantage to treating this syndrome (it may be hard at times, but it is definely not a road to hell). There are many women here who have had very severe symptoms who have found ways to manage and have had children and who have reduced their symptoms to a manageable level. Also were you 'properly' screened for other causes of your symptoms - thyroid, etc. Sounds like that doctor is NEGLIGENT as well as arrogant and rude.

First, (or second - whatever you want) you need to find yourself a supportive and sympathetic doctor - not all doctors are so bad, and it is really important to monitor and treat this condition, cause it can have long term consequences if it is ignored. To find this doctor, I would recommend that you contact PCOSA or post where you live on this board and ask people to give you advice. Many of us have horrific experiences with arrogant rude doctors before finding a sympathetic and supportive one. Some people have gone through 4,5 or more doctors...... before finding a good one and being able to improve their condition and situation.

Second (or first) do not give up. Never give up. Diet and exercise and appropriate meds can work wonders - though the progress may be very slow and it may take experimentation and a modern, up-to-date doctor to work with.

Definietly worth giving metformin a really good try, and there are also other drugs that may be beneficial. Many of us use this approach to reduce our risk factors (lower cholesterol, some weight reduction, increased fitness, etc.).

It is never never never too late to do something about this.

Third, educate yourself about this condition. This site and the PCOSA site are excellent. Also a very good book by Samuel Thatcher, MD.

Forth, use this and other sites to get the support and information you need.

Very best wishes to you and take care. Please try not to dwell on what that @#$$%@! dr. said. Just move forward and know that this is not the end of the road, you do have options and there are ways to deal with this. Yes there is no cure, but it can be managed.

-- Sally

At Sun, 24 Nov 2002, anonymous wrote: > >First of all, I have been diagnosed with PCOS for about 3 or 4 years, >though have suffered the effects since puberty. I have all the classic >symptoms: obesity, excess body hair, infurtility, acne, etc.. and have >had an ultrasound which confirmed that my overies were polycystic. After >the intial diagnosis 3 years ago, I was put on birth control pills and >Glucophage XR 1000 mg/day by a reproductive endocrinoligist. Two years >have passed since being put on the meds and I have seen no positive >results and have actually gained weight. At the urgeing of my family, I >decided to make another appointment. The endocrinolist who I saw two >years eariler had moved and I made an appt. with another doctor at the >same health facility. The dr. I was going to see is VERY respected and >(from what I gather) is one of the formost experts in the country in >PCOS. I was very excited to be able to see him and held hopes that >maybe he could help me. Imagine my absolute horror when he said that I >was basically beyond hope, that I would never get under 200 lbs unless I >became "a marathon runner and anorexic" and that basically I should >enjoy my shortened lifespan as much as a could (He was entirely >serious). Trying not to breakdown and cry in his office, I jokingly >said "Well, it's a long, hard road out of hell" He just looked at me and >said that my long, hard road was through hell. With my genes, I would >never actually make it out. He did say that they could run some blood >work and put me back on Glucophage XR but that it was probably a waste >of my time and money. It was very apparent that he didn't care if he >ever saw me again. His attitude during the whole visit varied from >ampathy to outright contempt. I was glad my sweet husband was waiting >for me after I got out. As soon as I got into the car, I burst into >tears. I have been constantly fighting severe depression for the last >five years and this really didn't help. I don't know what to do now. If >one of the leading national doctors in PCOS has no hope for me, why >should I even bother to continue this fight. I pray to God that no one >else has to go through the kind of self-esteem shattering, humiliating >doctor's visit that I endured.

Next message: Sonja: "Re: metformin and pcos"
Previous message: Heather: "Re: Docs in Denver, Colorado, USA"
In reply to: anonymous: "Hopes shattered by a prominate PCOS doctor (kinda long, sorry)"
Next in thread: kim: "Re: Hopes shattered by a prominate PCOS doctor (kinda long, sorry)"

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