PCOS-MEDICATION Messages for February, 2002: Re: Polycystic Ovarian Disease and Passing it On (long reply)

Re: Polycystic Ovarian Disease and Passing it On (long reply)

From: SusieQ (anonymous@obgyn.net)
Thu, 28 Feb 2002 17:53:06 -0600 (CST)

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In reply to: anonymous: "Polycystic Ovarian Disease and Passing it On"

Hi,

I also had a hyst with removal of ovaries, and they symptoms are just as bad as before. I take glucophage like everyone else to help with symptoms. Your ovaries are just wounded bystanders, not the car that hit them. The rest of the symptoms are not helped by th/bso.

As for your girls - it would be good to see pediatric endocrinologist. My eight year old has always shown signs of insulin resistence, and her endo just started her on Glucophage. Your girls are at risk for starting puberty too early, and a bone age xray of their hand should be done to determine if they have started puberty too soon. This is directly effected by insulin resistence.

They should also get all the blood tests that we do - creatinine, tsh, free t4, estrone, androstenedione, dhea, fsh, hemoglobin, insulin, lh, 17-hydroxyprogesterone, and testosterone.

I know is seems ridiculous to whisk them off to a specialist at such young ages. But my daughter is following in the footsteps of many women in our family. The hope is that with preventative treatment (exercise, diet, and possibly medication) that our girls will not suffer as severely as we did. It is important to know that not enough children have participated in longitudinal studies to make that prediction. It is just my hope. That is why we decided to let her start the glucophage.

I can tell you for sure that her post prandial glucose response is awful. After she eats sugar, she gets a headache and falls asleep. Halloween was a nightmare for us, and we were very careful to keep the candy to a minimum.

Dr. Silva Arslanian is a pediatric endocrinologist who is working with PCOS and pediatrics, you can read one of her articles here: http://www.obgyn.net/displaytranscript.asp?page=/avtranscripts/pcossandiego_arslanian.

This is just MVVHO, and you may be totally against treatment for your girls. This is just our little story to give you some idea that you are not alone. Your girls are not alone, and you do have choices. I hope this helps.

luck, SusieQ

>
>I was diagnosed with Polycystic Ovarian Disease. In 1995 I had a
>hysterectomy and was told this would be the end of this. But it is
>not true. The hirsutism is worse, weight gain is aweful. And even
>worse than all this, now 2 of my 3 daughters are showing signs of this
>disease. What do I need to do??????

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