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Re: I might have PCOS - but no help from my Obgyn

From: jennifer (anonymous@obgyn.net)
Wed, 27 Feb 2002 16:56:24 -0600 (CST)


At Tue, 19 Feb 2002, Panacea wrote: >
>Well Heather - what a mess! I can completely relate.
>
>For one thing, get off those birth control pills!!! Most of what you've
>listed are triphasic pills, meaning they have different hormone levels
>in each week's dosage. This has been shown in trials to make our
>condition *worse* by stimulating more cysts to form, and often times the
>hormones in bcps make symptoms worse in us because we already have an
>imbalance.
>
>Secondly, get a new doctor! go see an endocrinologist who is familiar
>with PCOS. Ask on the phone about it before you make an appointment!
>some endos are just as bad as the rest and think if you don't have
>diabetes, they don't need to treat you.
>
>Check out all the links here and in the archives for more info, do some
>web searching, and check out insulin resistance as well. But mainly,
>get a good dr!
>
>At Mon, 18 Feb 2002, Heather wrote:
>>
>>Hello - I looked through the archives, but was wanting some help from
>>this experienced team of ladies!
>>My story:
>>I am 27. Never been able to menstrate on my own without Birth Control
>>pills. Started menstrating at 13, and have been on Demoran/Demorva(?),
>>Ortho Tri-Cyclen, Ortho Cyclen, Tri-Phasil 21 and 28, and one other that
>>I cannot recal. I went to my Obgyn 3 months ago because I bruise SO
>>easily. He took me off Ortho Cyclen and told me to start taking Yasmin
>>as sson as I started to menstrate. Well, it has been over 3 months and
>>I haven't started. I was reading People magazine and read a story about
>>a woman who was taking Met. Then the net day I read the Woman's Day
>>article! That was weird! I had almost all the PCOS symptoms. I
>>researched it on the Web and then called both my PCP and Obgyn. Neither
>>seemed too interested in my findings! The Obgyn just keeps wanting to do
>>pregnancy tests (I have taken two and not pregnant!)
>>I have steadily gained 10 -30 lbs a year since 13. I crave carbs,
>>sugar, have acne, excessive hair on face (I am blond so you really don't
>>see it) and chest, and spot while I am on the pill (even then my periods
>>are only 2-3 days). I fianlly spoke to my Obgyn and he stated that I
>>only needed to worry about PCOS if I wanted to have a baby. Well, I do
>>in about three years...
>>I pulled both articles and took the PCOS quiz (scored a 13.5 out of 20),
>>and copied the Perloe article to take to him. The earliest he can see
>>me is March 7th.
>>Does anyone have any advice for me? I want to get tested for EVERYTHING!
>>But I feel that he won't support it unless I give him books of info.
>>Any advice would be much appreciated. I was so relieved to read those
>>articles and relate to those women! I may not have PCOS, but if I do, I
>>want the right to treatment! Please help. Sincerly, Heather
>
>--
>Panacea
>

--
Heather, I am sorry about the frustrations you are going
through with your doc, let me share something that happened to me
last month, because of a change in insurance, i had to change
all of my docs, except my endo, thank god, he's a gem, so i
went to a gyn that a friend recommended and told him i had been
under treatment for pcos, he totally diregarded all the lab
reprts and notes from my former docs and current endo, and said
i didn't need a doctor, i needed jenny craig, that there was
nothing wrong with me that losing a hundred pounds wouldn't
cure,(i am currently about 120 over) I immediatley sought
another doc, yours may not be that cruel, but if he is ignoring
your concerns, or not taking them seriously, maybe you should make
a change. I don't know about anyone else, but I don't think
that the only time to treat this is when you want to have a baby
there are so many long term health affects of this disease.
A book that I found helpfull was Living With Syndrome X. It's
a book about type 2 diabetes but it has a very informative
chapter on pcos. Good luck! Keep some good thoughts. Jen



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