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Re: Diagnosed at 13
From: Sonnet (anonymous@obgyn.net)
Sun, 20 Jan 2002 02:10:55 -0600 (CST)
I went through many of the same things too. I was told that everything
was due to me being obese. Eating too much junk food, being lazy, and
so on. Which was kind of funny because I didn't eat very much at all!
When I hadn't had a period by 21 I was told that was NORMAL because I
was young. I was practically bald and no one took it seriously. I
walked into one doctor's office and had her look up and blurt out, "My
God, you're huge!" I had a gyn I went to for a pap smear try to schedule
me for stomach stapling. It's just so ridiculous, all of the ignorance
that's out there in the medical field about this and how very much women
with PCOS are made to suffer because of it. That's personally why I got
involved with the PCOSA - I really feel that I couldn't do anything else
but spend my life trying to stop that happening to other women. Thank
God we've made some progress recently but there's still a long way to
go!
At Sat, 19 Jan 2002, Stefanie wrote:
>
>At Tue, 23 Jan 2001, Cyrilla wrote:
>>
>>Beth, I was diagnosed with PCO at 19 (I'm 36 too), and when I found out
>>earlier this year about the insulin connection, and the possible risks to my
>>health from diabeties, hypertension, heart disease, etc., I was frustrated
>>too!! All those wasted years that my condition just kept getting worse!
>>The funny thing is, I thought all my extra hair was because I'm part
>>Portuguese! Pretty funny, huh?
>>
>I have got an even better one. I started having these symptoms at 13,
>with onset of my period. I went to four differnet ob/gyns through the
>years. I was told that it was because I was Scotttish, because I was
>"obesse' (i wiegh a whopping 160, hardly obese), because I was sexually
>active, because I was depressed, because it is PMS, because I have an
>STD (nope, never had, never did), and because I did not excersise
>enough. Finally, I rolled the dice, and got a doctor that told me it
>was non IR PCOS. But all she could offer were BC pills, which made all
>my symptoms worse, and made me have a period every other week. I was
>diagnosed at age 25. Now, I am such a mess...my growth was severly
>stunted, im hairy, overweight, and scarred from the long years of no
>treatment and a miscarriage. WHy wouldnt a doctor take my complaints
>seriously? Why was my health made out to seem like a psychosomatic
>problem, as opposed to a real issue. How many other doctors do the same
>to other girls. WHat can be done?
>
>>> I was diagnosed with PCOS at 13 and I'm now 25. I never really thought
>>> much about it until my husband and I discussed having a child. It's
>>> unnerving to me that no one ever educated me on what having PCOS really
>>> was. My OB/GYN doesn't see a really big problem with it except for the
>>> hirutism and difficulty getting pregnant. But I've also found that PCOS
>>> is probably responsible for my hypertension, also diagnosed at 13! I
>>> learned 1 in 4 women have it, which makes it pretty common, however more
>>> should be done on it in the media and literature because folks like me
>>> just thought the hair was because I was German!!
>>>
>>> I'm not on any meds right now, but I am seeing my OB today and with the
>>> research I've been doing I'd like to ask for something that can combat
>>> my infertility ... we really want a little one!
>>>
>>> It's calming to see others out there with the same frustrations ... I
>>> always thought I was alone.
>>>
>>> Beth
>>> In the middle of the Pacific
>>>
--
Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
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