PCOS-MEDICATION Messages for December, 2001: Re: for Barbra

Re: for Barbra - saw palmetto and alopecia

From: Barbra (anonymous@obgyn.net)
Tue, 11 Dec 2001 04:57:05 -0600 (CST)

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At Mon, 10 Dec 2001, tera wrote: >
>Hi again!
>
>Started a new message the other was getting pretty long. I am taking
>the same dosage as you. Losing leg hair? I haven't heard of that being
>associated with our condition. A dermatologist may be able to help you
>with that since they are the skin/hair people. I will stay on the Saw
>Palmetto. You're right - at least it's cheap.
>
>I too am wondering why your docs don't have you on anything else for
>your insulin resistance. I asked my doc for a long time to start me on
>something for it and then I really did my research on it and then
>brought all of the information to one of my appts. To my excitement it
>did work to bring her around. Many doctors do not know the ins and outs
>of this condition or what the newest treatments are. I'm glad you are
>going to see a doc that is at least familiar with PCOS. You may still
>want to bring in any research you can. My advice is not to press but to
>give a humble presentation. In my experience some docs don't like to
>"learn" from their patients. But with all of the conditions and
>maladies out there docs can't keep up on everything! Research will also
>help you be able to discern what is true and what is not and my help to
>decipher some of the jargon! I know it gets confusing!
>
>The alopecia that your doctor was refering to is alopecia areata. This
>kind of alopecia causes people to have patchy baldness like you were
>talking about. When I was in cosmo school I had a few clients who had
>it and sure enough - strange bald patches while the rest of the hair
>seemed fine. Androgenic alopecia can cause diffuse (all over general
>hair loss) and pattern balding. I found a site that explains alopecia
>areata that is useful but I found a REALLY great site with EXCELLENT
>info on androgenic alopecia. It even talks about PCOS. Anyone who
>reads this post should definately check it out. As with any
>informational site or article - take the good and leave any bad.
>Knowledge is power with this condition. Take care, Barbra. Let us know
>how the appt. goes. Have a blessed holiday season. I will say a
>prayer on your behalf. God bless! Tera
>
>alopecia areata:
>http://www.npntserver.mcg.edu/html/alopecia/AlopeciaFAQ(part01).html
>
>androgenic alopecia: http://www.androgeneticalopecia.com
>
>--
>Tera
>

Hi Again Tera,

Thanks so much for all the info.It certainly helps to know that I should not show that I am completely ignorant to this syndrome and that I should be humble at my doctor's visits. I have had so many problems in the past....first,I was too quiet and let the docs to all the talking.....usually the appointment lasted no longer than a whole fifteen minutes.Then,I got so frustrated,that I became a little agressive...and that certainly didn't work either.

I will visit the website that you posted here.Hoping I can find some answers....soooo confused!

P.s....the leg hair grew back....but as I state in other posts...I have an ongoing problem with my legs called "Raynauds Phenomena"..related to my undifferentiated diagnosis of Lupus.

Another women wrote me privately,and gave me a website where it shows a correlation between PCOS and LUPUS. She had almost the same diagnosis as mine. She also had sjrogens(I mispelled it),,,so did I...that is clearly an indication of lupus.She said that there is a simple test....the doc takes a piece of tissue and tests to see if the eyes are producing tears....if the tissue is wet.....then it almost rules out the lupus...if it is dry...it apparantly gives a fairily good indication that you have the lupus syndrome.

I believe her name to be Kim....and if she is out there....I ask her to post the same letter on the site,as it was so informative to me. I have had a dry mouth (part of the sjrogens),and has led to all the denyn coming off on my teeth.They are so sensitive.

Anyways,,,,I don't know anymore...am getting sooo confused once again,so,I better head to bed(I am totally an insomniac).....

Once again,thanks for all your advice and wishing you a joyful holiday season as well. My prayers are with you=)

Another p.s......YOu women are the GREATEST!I DON'T FEEL ALONE AT ALL ANYMORE!

--
Sincerely,
Barbra Camara

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