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sorry, long rant...need cheerleaders

From: Becca (anonymous@obgyn.net)
Mon, 8 Oct 2001 14:09:40 -0500 (CDT)


Dear ladies,

Thank you for all your inspirational stories and advice. It's been a long time since I visited. Things have been very busy. After starting to deal with my PCOS, the drs discovered a tumor on my thyroid, and I had to deal that. The tumor turned out to be benign, and so now I'm trying to get pregnant again. And so the insanity begins again...

It first became apparent that I had PCOS when I put on 50 lbs in a few short months, had increasing hirsutism, and suddenly had periods every 2 weeks (due to anovulation). After months of trouble trying to get decent medical advice and even making an appointment with my HMOs fertility specialist, I got in the door there, only to have to stop because it was unknown whether my thyroid was cancerous or not.

The OB/GYN put me on the lowest dose of Zovia (the generic for Dumulen) while I was waiting to have my thyroid taken care of. Plus, I was put on a low-carb diet and got my blood sugar checked regularly. For almost 6 months, it worked great! My cycles were perfectly regulated, I lost 30+ lbs (now I'm 177 at 5'7"), and my blood sugar and hirsutism improved. My thyroid was treated successfully, then trouble began anew...

Last month, despite being on BCPs, I had spotting 3 days before my period. This month (my last month on the Pill), I started spotting last Thurs., A FULL WEEK BEFORE MY PERIOD IS DUE!! My blood sugar might be great, and my weight is down, but apparently my hormones are still completely out of whack!

I went to the reproductive endo today and I will start Clomid next week. Instead of feeling hopeful, I feel miserable! I feel like it's going to fail! My usually-sypathetic husband is optimistic and has no sympathy for my fear. The doctors don't want to discuss what MIGHT be needed outside of their plans for the first steps. I was sitting in the reproductive endocrinologist talking about the failure of my Pill and my curiosity to see if Metformin is a good idea for me. She responded, "Well, you'll have to talk to your OB/GYN and your endocrinologist about that." Of course, that would put off my treatment even longer. Of course, my OB/GYN and endo are on the opposite end of town and, of course, it takes weeks to get appointments with them. They all work for the same HMO...can't THEY talk to each other about my wellbeing. It's not my fault I have an illness that requires multiple doctors to treat it. What I really want is someone to give me guidance and so I can make well-informed and healthy decisions, instead of having people give me the run around. HMO mentality is like a factory or an immense bureaucracy where there is no communication or empathy or sympathy, and I have to jump through hoops to get half-way decent treatment. The scariest part is the the HMO was great when they treated my thyroid (the doctors were gentle and sympathetic, and they communicated with each other)...it's only for "women's health" that the system breaks down.

Whew! I just had to get that off my chest!

Becca




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