PCOS-MEDICATION Messages for August, 2001: Re: about being a patient...

Re: about being a patient...

From: Sally (anonymous@obgyn.net)
Tue, 21 Aug 2001 05:57:12 -0500 (CDT)

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In reply to: Thora: "about being a patient..."

At Mon, 20 Aug 2001, Thora wrote: >
>Hello everyone. I just started on Metformin and feel terrible. I was
>diagnosed 6 months ago and have been taking Dianemite (birth control
>pill) since then. I've been reading a lot about PCOS and told my doctor
>that my insulin needed to be checked and after that result he put me on
>metformin. The story of us all but do you also have a story of telling
>your doctors about the facts of our syndrome?! Strange, you pay somebody
>for having studied hormones and it all and then you have to know it
>twice as well yourself to get the correct medicine etc! And that's just
>AFTER you have visited million doctors that don't know a thing even
>though you have all of the symtoms....
>
>When I bought Metformin I discovered it was free. That reminded me of
>the fact that I will probably need this medicine for the rest of my
>life. :(
>
>I am very surprised how different our doses are. I take 500 mg a day
>(maybe because I just started?) and some of you take 2000...
>
>my final question is: do you trust your doctors?

Hi - I think this PCOS is a really underdiagnosed and under recognised. I actually found out accidentally and not thanks to my ex-obe that I have it. I am sure we all have such stories. I saw a GP and she commented on my weight and when she referred me to an OBE for annual checks mentioned I should ask about PCOS. I was all out curious and decided to look this thing up. Well - didn't bells ring. Funny I had not considered that having a period once every six weeks that lasted only 1/2 day was abnormal and didn't think to worry about not ovulating (Obviously I am not trying to get pregnant yet) - or the fact that I can eat less than 1200 calories a day and exercise vigorously and not lose weight, or my stomach growing bigger with stretch marks while my weight was stable, pimples, gorila belly and thighs (didn't used to have) etc. OBE agreed to do hormone testing and ultrasound and despite "Polycystic ovaries" and a LH:FSH (is that the right order) ratio of 5.1 said I was normal and nothing to worry about..... and I wouldn't know if I had problems unless I got myself married and tried to start a family (Yeah sure - when I'm not ovulating! But she didn't listen to that). (Have a female friend and she is also an OBE - and familiar with PCOS - she confirmed my self-diagnosis) - still finding another dr - but drugs here can be OTC (I am in Phils) and have started taking drugs already under supervision of my friend.

Bottom line is we have to educate ourselves and our drs and stand up for ourselves and our health.

--
Sally
Good LUck and best wishes
Sally

Next message: Zowie: "Re: PCOS and HEAVY periods? Anyone like this?"
Previous message: Sally: "Re: How long do the GI side effects last on Glucophage XR?"
In reply to: Thora: "about being a patient..."

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