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Re: about being a patient...Linda

From: anonymous (anonymous@obgyn.net)
Mon, 20 Aug 2001 08:53:29 -0500 (CDT)


Hi Thora, My name is Linda, and after about 8 doctors telling me I was fat and lazy, Iwas finally diagnoised with PCOS. I currently have a provider(knows next to nothing about PCOS) and a consulting DR who is desparately trying to help me. The endo I went to did not arrive at PCOS, because my test didn't display abnormalities, yet all the symptoms were there. I trust that this doctor is doing his best to help me, But I also understand that there is no sure fire treatment for PCOS and everything they are doing is only battling the symptoms, there is no cure. So I research the internet and look up thing like hypothalamus gland (how it regulates the body) and try to tie things together. This way I can do some of the research and Doc can explain the medical side of it to me. My doctor doesn't mind me putting my two sense in. Remember two heads are better than one. I hope this brings you all some sort of comfort, all they can do is try, and right now Metaformin and spironolactone are it for me. I can't take any birth control it causes instant weight gain with me. Everybody experiences different symptoms. It may work for someone else. I am looking for some sort of deficiency with the glands, something is sparking the ovaries to produce more hormones(because of this pain in my head). Hope this helps,Linda At Mon, 20 Aug 2001, Thora wrote: >
>Hello everyone. I just started on Metformin and feel terrible. I was
>diagnosed 6 months ago and have been taking Dianemite (birth control
>pill) since then. I've been reading a lot about PCOS and told my doctor
>that my insulin needed to be checked and after that result he put me on
>metformin. The story of us all but do you also have a story of telling
>your doctors about the facts of our syndrome?! Strange, you pay somebody
>for having studied hormones and it all and then you have to know it
>twice as well yourself to get the correct medicine etc! And that's just
>AFTER you have visited million doctors that don't know a thing even
>though you have all of the symtoms....
>
>When I bought Metformin I discovered it was free. That reminded me of
>the fact that I will probably need this medicine for the rest of my
>life. :(
>
>I am very surprised how different our doses are. I take 500 mg a day
>(maybe because I just started?) and some of you take 2000...
>
>my final question is: do you trust your doctors?



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