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Re: NYC resident with PCOS, no insurance

From: Sarah (anonymous@obgyn.net)
Mon, 30 Jul 2001 09:34:09 -0500 (CDT)


i am also a young professional (23) living in NYC with PCOS. i go to Dr. Vidali (212-750-3330) and am very satisfied with the medical attention i've received there. he's a reproductive endocrynologist who specializes in PCOS. Dr.Walter Futterweit (212-876-6400) is also a very good PCOS specialist, though i cannot go to him because he does accept my insurance. Martha McKitric is an excellent nutritionist who i've visited once just to get some "good diet" ideas (i am also vegetarian, though not overweight). she sees a lot of people with PCOS. i can dig up her number if you are interested.

i was diagnosed about 5 years ago and am just now starting to get the medical attention i deserve--and i could kick myself for not getting on the ball sooner. there are lots of good doctors out there who know about this syndrome, are sympathetic, and are willing to be progressive in terms of treatment--especially in the NYC area. it has only been 8 months since i've started seeing my current doctor, and i am shocked by how much better i'm feeling and looking just by being on the right medication. i am taking Orthocept BC pills, and 100 mg of Spironolactone/day which helps with acne and facial hair, and brings down my testosterone levels. i am also using Vaniqua cream which really does wonders. before i started seeing him, i was shuttling myself between unsympathetic gynos who had me on these terribls BC pills that are awful for people with PCOS, and they never even told me about other medication options (like Glucophase, spironolactone, yasmin, etc....).

i work for a non-profit, so even though i have health insurance, i am on a budget and have to be careful about dr.s visits (there's still a co-pay) and perscription costs (even though it's covered, it all adds up!). my doc is sympathetic to this and often refills my perscriptions without making me come in and pay for a visit, and will discuss my condition with me over the phone instead of making me come in. after being frustrated for so long, i have learned to be agressive with dr.s, so i'm up front about what i need, what i'm willing to do, etc.

the most important thing is that you 1) get to a repro. endo 2) get your hormone, insulin etc. levels tested. once that happens, you and your doc can discuss the best treatment options for you. also, there are a few "interim" health care plans specifically for people our age, that allow you to pay per month that are better than medicaid. are you eligible for Cobra? again, i can't tell you how important getting to a doc is in terms of both physical and mental health! it's worth the money. if you have anymore question, feel free to ask me!

--
Sarah

At Fri, 27 Jul 2001, anonymous wrote: > >I am in desperate need for medical care. I was diagnosed with PCOS >about 4 years ago by a doctor whose attention was paid for under my >college insurance. Now that I'm out of college, unemployed and without >insurance, my health is pending on my employment status. I'm trying >depserately to get a job, but the industry (publishing) I'm seeking is >in a dry spell at the moment due to the economy. Though I'm willing to >accept medicaid, I'm skeptical because I've been to city doctors who >gave me little attention, dismissed my concerns and misdiagnosed me. I >do not want to go through the hassle of getting insurance if I will >receive such poor care. It also saddens me when I have to explain so >much and tell them my personal story to a doctor who seems insensitive >to my concerns and too busy to address them due to the high number of >patients. My health and mental condition is very critical. I am very >depressed by the excessive hair and how it effects my lifestyle/dating. >ALso, I have no idea what my progesterone, LSH or testosterone levels >are and I need a nutritionist to meet my vegetarian lifestyle. Any >suggestions? I live in NYC and I need a doctor who specializes in PCOS >or endocrinology.




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