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Re: MY PERSONAL STORY
From: anonymous@obgyn.net
Sun, 22 Jul 2001 16:22:46 -0500 (CDT)
At Thu, 19 Jul 2001, =?iso-8859-2?q?Zalányi wrote:
>sam have we already emailed each other ?
> <wowedout@juno.com (kristi)> 2001.07.19. 02:33:51 -5h-kor írta:
>Hi Kristi,
>
>What kind of lab work up have you had. Any hromone results?
>For my further info
>
>Sam
>
>> I want to tell my personal story and see what kind of replies I could
>> get and what kind of advice may come out of this effort. First off I
>> want to let all of you know that you are not alone. I have been
>> diagnosed with PCOS since i was 13 years olds I am 23 now. I have had
>> ample ultrasounds,experimental medicines,procedures blood work ups.
>> biopy's even a lapryoscopy all to come to the conclusion nothing is
>> really wrong. I honestly can't decide if i believe i have pcos because
>> many of the symptoms i am lacking. I have never had normal periods in
>> fact in my whole life i have probably had maybe 10. I am married and
>> would like to have a baby so only within the last year have I became
>> really active in trying to figure this thing out and seeking support. My
>> family isn't much support they seem to think it is all in my head. I
>> have noticed over the past year my personal symptoms have gotten worse
>> in a few weeks I have a appt. with a reproductive endocronologist i am
>> hopeful about this appt. my primary car physician has basically washed
>> his hands of these symptoms he doesn't know how to help me. i was on
>> actos for 8 months and it was very expensive experimental medicine $120.
>> a month insurance would not pay for this I had one period that lasted
>> one day and as a result of that one day stayed on a serzone high for
>> about a week. I have gained over 100 pds over the past year with no
>> explanation. I have ample gastrointestional problems and have been
>> diagnosed with fibromyalgia associated with firbromyalgia is
>> infertility. I don't know what is ahead for me but i prey it is
>> positive. My hair is very thin though and blonde and sparse all over my
>> body so i don't have that paticular symptom. i don't have dark patches
>> of skin or skin tags i have never actually had a cyst on my ovary and
>> most of my weight is not in my middle its everywhere distributed evenly
>> hahaha ! i do also have a birth defect called poland syndrome has anyone
>> heard of that ? i often wondered if somehow it is not all connected and
>> if some dr. would just take the time to spend a little time on me could
>> they find out the source and offer me the correct medicine instead of
>> keeping me and maintaining me on about 8 different meds. ? My husband
>> is very supportive of me and is going for a sperm evaluation tommorow
>> actually just so we can rule that out. please reply to me or email me
>> at my personal email address wowedout@juno.com i am seeking
>> friends,advice,support......your personal story and what you can offer
>> me is much appreciated.
>>
>> Together In This Battle ~
>> KRISTI
>>
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