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Re: MY PERSONAL STORY
From: =?iso-8859-2?q?Zalányi Sámuel ?= (anonymous@obgyn.net)
Thu, 19 Jul 2001 21:29:56 +0200
<wowedout@juno.com (kristi)> 2001.07.19. 02:33:51 -5h-kor írta:
Hi Kristi,
What kind of lab work up have you had. Any hromone results?
For my further info
Sam
> I want to tell my personal story and see what kind of replies I could
> get and what kind of advice may come out of this effort. First off I
> want to let all of you know that you are not alone. I have been
> diagnosed with PCOS since i was 13 years olds I am 23 now. I have had
> ample ultrasounds,experimental medicines,procedures blood work ups.
> biopy's even a lapryoscopy all to come to the conclusion nothing is
> really wrong. I honestly can't decide if i believe i have pcos because
> many of the symptoms i am lacking. I have never had normal periods in
> fact in my whole life i have probably had maybe 10. I am married and
> would like to have a baby so only within the last year have I became
> really active in trying to figure this thing out and seeking support. My
> family isn't much support they seem to think it is all in my head. I
> have noticed over the past year my personal symptoms have gotten worse
> in a few weeks I have a appt. with a reproductive endocronologist i am
> hopeful about this appt. my primary car physician has basically washed
> his hands of these symptoms he doesn't know how to help me. i was on
> actos for 8 months and it was very expensive experimental medicine $120.
> a month insurance would not pay for this I had one period that lasted
> one day and as a result of that one day stayed on a serzone high for
> about a week. I have gained over 100 pds over the past year with no
> explanation. I have ample gastrointestional problems and have been
> diagnosed with fibromyalgia associated with firbromyalgia is
> infertility. I don't know what is ahead for me but i prey it is
> positive. My hair is very thin though and blonde and sparse all over my
> body so i don't have that paticular symptom. i don't have dark patches
> of skin or skin tags i have never actually had a cyst on my ovary and
> most of my weight is not in my middle its everywhere distributed evenly
> hahaha ! i do also have a birth defect called poland syndrome has anyone
> heard of that ? i often wondered if somehow it is not all connected and
> if some dr. would just take the time to spend a little time on me could
> they find out the source and offer me the correct medicine instead of
> keeping me and maintaining me on about 8 different meds. ? My husband
> is very supportive of me and is going for a sperm evaluation tommorow
> actually just so we can rule that out. please reply to me or email me
> at my personal email address wowedout@juno.com i am seeking
> friends,advice,support......your personal story and what you can offer
> me is much appreciated.
>
> Together In This Battle ~
> KRISTI
>
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