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Re: HELP!!!!!!!!!!!!!!!!!!!!!!!!From: Dona (anonymous@obgyn.net)Sat, 31 Mar 2001 13:03:23 -0600 (CST)
Hi Kristy, Have you seen a specialist? A reproductive endocrinologist. Most fertility clincs have one. Even if your not trying to have a baby PCOS does cause infertility as you know. So this might be a good person to consult with and get you on the right track with the proper medications such as metformin or Avandia alone or in conjunction with BCP and spiro if you do not wish to get pregnant. I was a lot like you. No periods for months at a time and a lot of pain. when I did have a period it would be painful and I would bleed for 2 weeks.I had to self refer to a Reproductive Endo. He did all the hormone testing and IR testing and Ultra sounds and put me on Actos (Simular to Avandia) after one month on Actos I had a period. I have had a period every 25 days since and it lasts the normal 4-5 days instead of 14.I still do have slight pain and cramping but not nearly as bad as before. OBGYN are great to see if your pregnant and have no issues like PCOS.Some are aware of PCOS but not all. A Reproductive Endo knows a lot more about PCOS than a regular OBGYN. Hope I helped in some small way and good luck at your doctors appointment I Hope you found a OBGYN that is PCOS educated. Dona > >Hi, everyone. I had not had a period for 8 months and I was getting >scared. I went to a specialist in Jan 99. He diagnosed me w/ PCOS. He >then put me on birth control pills. I had already told him that bc made >me sick, but he did not listen. I tired the first rx and they of course >kept me sick for 2 weeks. I called and couldn't talk to him (of >course), but his nurse had him call me in another rx. I tried those >with the same effect. Needless to say I have not been back to see him. >I can almost forget about the PCOS from time to time - then the >unbearable pain starts. On one of these all to often pain filled >occurances (Nov 99) I went to see my Family doctor. She did several >tests (sonogram, pap, etc.) and then told me I did not have PCOS, it was >just a virsus - mixed with PMS. You all can imagine I was on top of the >world - except I did not have a reason for all the weight gain (I went >from a size 7 to a size 16 in less than a year), the full facial hair, >or the loss of energy and sexual appetite. She tired me on Progestrone, >which made me have a period. Then she put me back on bc. I was >determined to listen to the Dr. - who is supposed to know best. I was >sick and did not stop bleeding for two full months, until I stopped >taking them... > >In April 2000 I was cursed with the uncontrollable pain again and was >forced to see my Dr. again. This time she questioned me about my >period - which I had not had since I stopped the birth control pills. >She then rediagnosed me with PCOS. She tired to put me back on bc, but >I will not take them or see her again concerning PCOS. > >I usually start to hurt every six months - does anyone know why? > >I had the same horrible pain last week. (You know it is almost >impossible to do anything when you feel this way.) This prompted me to >call an OB/GYN and I have an appointment on Thursday. No one >understands what I am going through and my family wants me to go back on >bc. Do any of you have any suggestions? > >I will be married a year in July and we want children, but we don't want >to wait to long. We would like to start trying next year (we are not >doing anything to prevent now), and we know we will have to have help. >Any suggestions? Should we just keep up what were doing or seriously >check into it now? We don't know if it will take 6 months or 6 years or >if it will even be possible. I know you understand my concern. > >I am sorry to have taken so much of your time, but this is my first time >here and I need to have some answers from someone who understands. > >Anxiously Awaiting a reply >Kristy
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