PCOS-MEDICATION Messages for February, 2001: Re: Help is there a competent doctor that can treat PCOS anywhere????

Re: Help is there a competent doctor that can treat PCOS anywhere????

From: Bronwyn (anonymous@obgyn.net)
Fri, 16 Feb 2001 11:31:29 -0500

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: anonymous: "General endocrine disorders and PCOS"
Previous message: Mike: "Help is there a competent doctor that can treat PCOS anywhere????"
Maybe in reply to: Mike: "Help is there a competent doctor that can treat PCOS anywhere????"
Next in thread: Jenny: "Re: Help is there a competent doctor that can treat PCOS anywhere????"

Hi Mike and girlfriend! *HUG*

You've, unfortunately, experienced the "traditional" way of treating PCOS. There are TONS of doctors who are CLUELESS!!! I have gone to endocrinologists who've told me they don't know anything about newer treatments and refuse to learn or read anything I bring in to them! A lot of us feel that even worse than the medical problems of PCOS itself is having to deal with an uncaring and clueless medical field! In other words.....YOU ARE NOT ALONE!!!!

Hence the formation of support groups on the internet and in person.......by sharing information and frustrations and giving each other support to deal with everything, we hope to slowly change the way the medical profession views us. Most of us are MUCH more informed than our doctors. You're off to a great start.....monitor the posts here, read the archives, and do a little "research" whenever you can. There are also other PCOS support groups online who can give you more specific information for doctors in your particular area that are compassionate and knowledgable of PCOS. One I know of is http://www.pcosupport.org They have chapters in most states and several countries.

By banding together and forming a collective voice, we women are hoping to make an impression on the medical field that we are in need of help and DESERVE compassion. It's not "in our heads" or "just lose weight"....PCOS is a REAL medical problem. We've got a long way to go, but I think we're making some progress. I have read of several new discoveries during my 1 1/2 years of being part of an online support group. As we share our stories, we also begin to discover things that we never would have thought directly related to PCOS.....like cracked, dry heels.....the skin darkening around the neck.....flakey scalp.......hair loss on the head.......excess hair in unwanted places......mood swings.....depression......etc etc. I think the medical community, with a LOT of prodding on our part, will begin to notice that we're NOT a bunch of hypochondriacs, and that we're intelligent women who are finding links and answers on their own by sharing, and all we need is a few medical professionals to take a real look at what we've discovered ourselves......maybe then, we can whip this thing for good! Until then....the BEST thing you can do for your girlfriend is to be as understanding and compassionate as you can. PCOS is a medical problem just as a broken leg, diabetes, asthma, etc......although there may be some things we have done that could contribute to our condition, I really don't believe it's something we can control or avoid just be doing or not doing certain things.

Best wishes....sorry I didn't give you any true answers.

Hugs,

Shelley spryte@dnsonline.net

>----- Original Message -----
From: Mike <anonymous@obgyn.net> To: Multiple recipients of list PCOS-MEDICATION <pcos-medication@forum.obgyn.net> Sent: Friday, February 16, 2001 12:06 PM Subject: Help is there a competent doctor that can treat PCOS anywhere????

> Help, My girlfriend of 4 serious years was finally diagnosed with PCOS.
> We have faced a veritable mountain to even reach this stage. Looking at
> all the information on the web It seemed pretty obvious to us what the
> problem was but to her primary care physician she was a mystery and a
> "project". We waited four months to see an endocrinologist. We finally
> saw him and he told us that she has PCOS, well duh. But after that he
> blathered on about how this is a very complex, syndrome. We asked him
> about the hair growth, he told us nothing. Said to try vaniqa. Is that
> the only thing on the market???? We asked about the weight gain, he
> dodged the question. We asked again, dodged. Again, dodged. So
> finally after 45 minutes of wasted time, we left. He never set forth a
> treatment plan. Never told us what he was planning on doing to help
> alleviate the problems. The way he made it out is that PCOS is more
> widespread than thought but we don't know what it is and don't know how
> to fix anything about it. He almost said live with it. Is there anyone
> in the state of Kansas that can competently treat PCOS without feeling
> like you have to show us how smart you are? Is this doctor even halfway
> clued in as to the specifics of the syndrome?
> HELP
>

Next message: anonymous: "General endocrine disorders and PCOS"
Previous message: Mike: "Help is there a competent doctor that can treat PCOS anywhere????"
Maybe in reply to: Mike: "Help is there a competent doctor that can treat PCOS anywhere????"
Next in thread: Jenny: "Re: Help is there a competent doctor that can treat PCOS anywhere????"

use when must restrict search to only the pcos medication forum...
Enter search keywords:
	Returns per screen: Require all keywords: