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Re: For Sue and allFrom: Sue (anonymous@obgyn.net)Tue, 19 Dec 2000 13:59:36 -0600 (CST)
>The main question I have now...is what happens after the medications?< I guess that depends on what you do. I had to be off met (Glucophage) for several months this summer and found that my symptoms came back with a vengeance. I'm now on Actos (and Spirono) and everything's starting to get back under control. I do think that you might be seeing this PCO struggle as a "temporary" thing you have to go through in order to "get better," and I don't think that's the case for any of us. Your DNA (as well as mine and everyone else's with PCO) has a glitch--it causes our pancreases to overproduce insulin. DNA problems are not "get better" type problems. If your DNA said that your pancreas "shouldn't" produce enough insulin, you'd be diabetic (by definition), and you'd be on insulin. Forever. It's not something you "get better" from. I have friends who have a child with a condition so rare he's only one of three in the world who's still alive with it. It's a DNA glitch and he will never "recover," but he (and his parents) will learn to work within his condition and live a productive life.
>If your body suddenly loses some weight(or over a period of time) because of the medication, will you gain it all back just the same after you stop taking the meds?< Very likely. Again, it depends on what you do, but our bodies are one inter-linked system(s) in which things work in tandem. In other words, if your "insulin producer" is "broken" and you over-produce insulin, it affects your weight, your skin, your metabolic rate, your fertility, etc. See where I'm going with this? If your "insulin producer" doesn't "get better" and while in treatment for that you lose weight, it stands to reason if you go off the treatment and your "insulin producer" isn't better, then you'll gain the weight back. For the time this summer I was not on an insulin senstizer, I did gain weight, despite the paltry amount of food I took in. When I went back on a sensitizer, it came back off and has stayed off.
>I also believe that taking any type of medication long term is not the answer.< Again, how do you see diabetics? Insulin is a medication (of sorts) and is their only hope. What about those with coronary artery disease who have to take cholesterol reducing medications in order to prevent future heart attacks? Or those who have some other disorder that requires daily maintenance medication? I know it's not ideal, but we don't live in a perfect or ideal world, so we have to work within what we have and do the best we can. I firmly believe that (at least for now) insulin sensitizers are the best PCO sufferers can do, and thus we must work within that framework. --Sue
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