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Re: Newly Diagnosed wiht PCOS
From: barbie (anonymous@obgyn.net)
Tue, 1 Aug 2000 15:02:54 -0500 (CDT)
I have been on Spironolactone and Dianette for 7 years after being
diagnosed with PCOS at the age of 16.My facial hair has reduced
significantly ( I even wear my hair back off my face whereas before I
used it to cover and hide my facial hair). However, the side effects i
am now dicovering are massive ( obviously this may not be for everyone
but this is how it has effected me). In me it has resulted in Female
sexual dysfunction ( I find it impossible to become sexually aroused )
due to the effects of Spironolactone (known to cause impotence in men).
This is the most distressing problem of all as this has caused me to
become anxious at the beginning of relationships- which in turn has
manifested itself in vaginismus- and am unable to have sexual
intercourse. Therefore for the last 4 years I have avoided
relationships and only now have I sought medical help as I did not
understand what was happening to me. As the area of research into
womenns health is very llimited at present, I advise researching all
side effects of all medication and reseraching alternatives. Not doing
for myself has been very upsetting when it needn't have been. I am
hoping the diabetes treatments and changes in diet may help and am
hoping to come off spironolactone. I am at present reseraching medical
journals to look into possible treatments myself with the help of a
friend who is a medical student. Good Luck and be carfeul before
volunteering for medication you are unsure of!! If anyone else has had a
similar experience with this please let me know if you have any advice-
thankyou!
>
At Tue, 11 Jul 2000, anonymous@obgyn.net wrote:
>
>Elizabeth,
>I will try to give you a few answers. I'm in no way an expert but am
>willing to try.
>It is my understanding that Provera just causes you to shed the lining of
>your uterus, and does not cause ovulation. I don't know what the
>prescription says about taking it so I don't know how long it will be
>before you get a period after starting it.
>
>PCOS is unique to everyone who has it so some are definitely infertile
>and others have a better chance. Some do ovulate more than others. I,
>for instance, was able to have 2 boys and only needed to take baby
>aspirin to help but they didn't know I had PCOS at the time. I also
>miscarried 2 times, thus the baby aspirin idea.
>
>The Spironolactone is a testosterone blocker and will help with the hair
>problem. I haven't noticed it being a strong diuretic though. I am
>taking an extra diuretic on top of the Spironolactone. It may be a
>factor in helping with weight loss. Some have found help with the weight
>loss by taking glucophage. I believe it's the excess insulin that
>prevents the weight loss as opposed to the testosterone. Although, the
>testosterone doesn't help matters.....
>
>I hope I've been a little bit of a help to you.
>Polly
>
>On Tue, 11 Jul 2000 00:37:18 -0500 elizabethabdale@hotmail.com
>(Elizabeth) writes:
>> Hi Everyone. I am a 24 year old who has just found out that I have
>> PCOS. I was put on Provera, which I am wondering if A) does it just
>> trick my body into giving me a period, sort of like the birth
>> control
>> pill? B) I started taking it and I don't understand, should I get my
>> period now within the ten days of taking it every month or after?
>>
>> Also, with PCOS, does that mean indefinetly I am infertile? or will
>> I be
>> able to have children but only wiht medication?
>>
>> I was also prescribed spironolactone. Which the Dr. said was a
>> Testerone blocker. I noticed that it's a dieretic because my 60
>> year
>> old mother takes this. Now dierectics to me always meant losing
>> weight,
>> will this help wiht my weight loss as well as blocking the
>> testosterone?
>>
>> Thanks for all your help.
>>
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