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Re: Frustrated

From: Annie (anonymous@obgyn.net)
Sat, 25 Mar 2000 11:17:39 -0600 (CST)


At Wed, 22 Mar 2000, Amy wrote: >
>Cindy, This can turn into a matter of life and death. I would call and
>leave one more message for the doctor, but that's it. Then I would find
>another doctor. One who will listen and who cares about their patients.
>I have gone 9 years being undiagnosed. Doctors telling me to lose
>weight and my period would come back. I tried and of course failed. My
>current doctor sent me to a reproductive endocrinologist. Yesterday, I
>was FINALLY diagnosed with PCOS! I am happy and relieved. Happy because
>I finally know what is wrong. I have been to doctors, had ultrasounds,
>they all told me there was nothing wrong. But yesterday, in under an
>hour, I was diagnosed. When he showed me my ovaries and that they were
>polycystic, I almost wept. Even now, I am so emotional. I have started
>glucophage (fun, fun) and will be uping my dosage in a few days. But
>please don't waste your time on doctors who won't listen, find another
>one. If that one doesn't respond, find another one. But don't wait.
>That is time that you could be getting things under control. I believe
>if I had pressed hard enough nine years ago, I wouldn't have gained 200
>lbs.
>
>My husband is trying to be understanding in this and but it is hard to
>explain to him in the emotional detail I would like.
>
>Good luck.
>Amy
>
>At Wed, 15 Mar 2000, Cindy wrote:
>>
>>I am super frustrated right now -- My MD had me tested 2+ weeks ago for
>>PCOS (I have almost all of the visible symptoms: lack of peroids, facial
>>hair, hair on abdomen, overwieght) So 2 weeks ago I had the blood tests.
>>I have not yet heard from my physician about the results!
>>
>>I talked with a nurse last week who told me that my kidney function was
>>fine. I have no idea what that means in respect to the tests that were
>>performed. She also told me that PCOS is not a matter of life or death
>>and that it doesn't effect my every day life so I shouldn't be concerned
>>which way the results go. I got off the phone and cried! I am a 23 year
>>old woman -- I shouldn't have facial hair. It does effect my every day
>>life because I pluck 20 hairs off of my face per day.
>>
>>>From what I've read, PCOS may not be a matter of life or death today but
>>it may increase my likelihood of endometrial cancer. That is life or
>>death!
>>
>>I'd like to know if I have a name for my symptoms in order to treat
>>them. I don't want to have PCOS but it seems that I have a lot of the
>>physical sypmtoms. I'm just so frustrated because she (dr) isn't
>>calling and I don't know what is going on. She had mentioned that she
>>wanted to talk with the endocrinologist before she discussed the results
>>with me. That is fair - how much time should I give her?
>>
>>I'm sorry to vent like this -- my family and friends don't understand -
>>they don't have these symptoms. Thanks for listening -- I'll update
>>when I have my results.
>>
>>Thanks!
>>Cindy
>>Madison, WI

--
I have just started taking glucophage 1000mg per day, I can't wait to see the results!!!!  the only thing is the low carb diet seems impossible!!  I have to put the whole family on a diet to live up to the restrictions!!!  I was told 30gr of carbs per day!!!  Thats only one can of soda and I'm done for the day, how do you live on this!?  I really need help!! It's taken 17 years to be diagnosed with pcos and now that I know what it is and have found treatment I'm not sure if I can manage the dietary part of it.  If anyone out there has any advice I sure would appreciate some.  It's so good to know that others have shared this problem with me and are finally receiving help. I too was told lose weight, exercise more, you name  it. It feels good to know that I can finally say,"See I told you I don't eat too much, I have a real problem!"



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