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Re: Jammi's daughterFrom: anonymous@obgyn.netThu, 12 Dec 2002 10:28:31 EST
Hi Jammi - My name is Renae. In answer to your direct question - some other symptoms are hair loss, excess hair growth (in "male" locations), excess weight, inability to lose weight, absent or irregular menstruation. There's others, but these are the most frequent and most physically evident ones. PCOS tends to strike in tween or early teen years, as it is linked to hormone levels. I think 10 is a really early age for it to occur, although I don't know enough to want to say that it's impossible. However, when you also consider the 4 years that you have been looking for answers . . . that takes you back to 6 - and at that point, I would be willing to venture it was impossible. One thing that would be worth your time to investigate is a condition called Sensory Integration Disorder. This condition involves the ability for a child to normally take in sensory input (vision and hearing are fine, among other things), but their brain does not adequately process the information it is receiving. This condition is all too often misdiagnosed as ADHD. The things that you mentioned that made me think of it were light and sound sensitivity. The DSI spectrum involves both extremes of the scale - those who are hypersensitive to stimuli and those who are hyposensitive. My 8 yo son has DSI. A superstore like Wal-Mart makes him absolutely wild (hypersensitive), but he can go outside in 20 degree weather with no coat and be perfectly comfortable playing (hyposensitive). The following sites are good starting places for an intro to DSI: <A HREF="http://www.childhoodanxietynetwork.org/htm/si">http://www.childhoodanxietynetwork.org/htm/si</A> <A HREF="http://www.apraxia-kids.org/links/linkssi.html">http://www.apraxia-kids.org/links/linkssi.html</A> I also highly recommend the book The Out-of-Sync Child by Carol Kranowitz. This is a laypersons book about DSI. I borrowed it first from our library (they got it by interlibrary loan), and then bought my own copy so I could scribble it up LOL A couple of words of caution - 1) you will find that a lot of the kids that have it were adopted, generally out of "the system" - either internationally or having been in state care for a while. That is only one of the contributing factors. My son is not adopted. 2) Your pediatrician is a good place to start; however, don't let his response determine your future action if you really feel it is a possibility. I spoke to our pediatrician about it - he was familiar with the condition, but rather dismissed it in my son's case. He offered to make a referral, but said he didn't feel it was necessary. I found an OT on my own, and took my son to her for evaluation because I was convinced it was worth investigating. You should have seen our pediatrician's face when he saw the results of testing and my son places very significantly well within the range of DSI. As the parent, follow your gut as the advocate for your child. I think you may have already learned that lesson. I had a counselor tell me once regarding this son, "You will have to be your son's advocate until he is into his 20-s. No one else will look out for his interests like you will." You may email me personally if you have any questions. I hope you find answers! Renae faithgenerations@aol.com
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