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FW: PCOS-DIET digest 465

From: Stephanie (anonymous@obgyn.net)
Sun, 6 Jan 2002 19:03:47 -0000

Hi - I've only recently started following the board messages so may have missed something important previously. However, I was very interested to hear about your TSH count and thyroid issues. I was diagnosed with PCOS 7 years ago and was recently found to have a similar TSH rating to you - fell from 0.21 to 0.03 in the space of 3 months. However, I didn't have any of the symptoms of an overactive thyroid (eg. losing weight - definitely not happening!!) nor did I have a heightened TS4 count. I recently got to see an endocrinologist who says the thyroid symptoms are unrelated to the PCOS. Instead, he says I've got a nodule on my thyroid which is interfering with the negative feedback cycle between the pituitary and thryoid gland. If I've understood this properly, the nodule is boosting the amount of TS4 the thyroid gland is producing so the thryoid gland is telling the pituitary it doesn't need to produce TSH - hence the TS4 has remained within normal confines (ie. no overactive thryoid) while the TSH has slumped dramatically to 0.03. However, the endo tells me this balance is only temporary and at some point (though he can't say when) I will develop hyperthyroidism - consequently, depending on my scan results the nodule may need to be removed. I don't know if this has any bearing on your results but I really hope you get it sorted out - there is such a maze of info to work through. I'd also be fascinated to know if any of you know HAVE hard of links between thryoid problems (eg. nodules) and PCOS.

Steph

-----Original Message----- From: anonymous@obgyn.net [mailto:anonymous@obgyn.net Sent: 05 January 2002 08:23 To: Multiple recipients of list PCOS-DIET Subject: PCOS-DIET digest 465

PCOS-DIET Digest 465

Topics covered in this issue include:

1) overactive thryoid Re: Ketosis by anonymous@medispecialty.com (Panacea) 2) Re: I don't mean to come on too strong.......... by anonymous@medispecialty.com (Panacea) 3) Losing Weight by anonymous@medispecialty.com (Elizabeth) 4) Re: I don't mean to come on too strong.......... by barbaracamara@yahoo.com (Barbra Camara)

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Date: Fri, 4 Jan 2002 10:03:54 -0600 (CST) ---------------------------------------------------------------------- From: anonymous@obgyn.net (Panacea) 

--
----------------------------------------------------------------------
To: anonymous@obgyn.net
Subject: overactive thryoid Re: Ketosis
Message-ID: <200201041603.g04G3sn11610@mail.medispecialty.com>


At Thu,  3 Jan 2002, Pat wrote:
>
>Usually someone with an overactive thyroid [hyperthyroid] will have
>sudden and dramatic weight loss, and sometimes hair loss.


Okay well that still doesn't make sense because my thryoid is
definitively overactive.  I just saw my doctor yesterday and he revealed
that my TSH levels were down even further, the first time they were 0.16
and the second time they were 0.04.  I assume this is very obviously an
overactive thyroid.


Furthermore all the symptoms I am experiencing right now are very
familiary to me, before birth control I had them all.  Some lessened on
the bcp but now are back in full force.  The first levels were taken on
bcp the second were taken a couple of weeks after I stopped bcp.


It doesn't make sense because I am very overweight and never experienced
weight loss and certainly am not experiencing it now despite the last
three weeks on a low carb diet.



--
Panacea
Diagnosed PCOS in 1998, didn't get treated until 2002 :(


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Date: Fri,  4 Jan 2002 10:05:44 -0600 (CST)
------------------------------
From: anonymous@obgyn.net (Panacea)
------------------------------
To: anonymous@obgyn.net
Subject: Re: I don't mean to come on too strong..........
Message-ID: <200201041605.g04G5iW12740@mail.medispecialty.com>


At Fri, 4 Jan 2002, anonymous@obgyn.net wrote:
>
>ouch kids.. we are in this together and speaking as the mood swing queen of
>the PCOS world.. i know how impatient and irritating somethings can be..
but
>show a little love... we are all #$%^&*,  lets not get on each other's
>nerves.


LOL... if anyone can understand mood swings it should be us :)



--
Panacea
Diagnosed PCOS in 1998, didn't get treated until 2002 :(


------------------------------


Date: Fri,  4 Jan 2002 10:08:02 -0600 (CST)
------------------------------
From: anonymous@obgyn.net (Elizabeth)
------------------------------
To: anonymous@obgyn.net
Subject: Losing Weight
Message-ID: <200201041608.g04G82n14954@mail.medispecialty.com>


I have been a PCOS sufferer since I was 21.  I was always very thin 5'8
and weighed 103 pounds.  In two months at the age of 21 I gained 45
pounds and my periods ceased to exsist.  Since that time I have been
through it all with this disease.  Losing hair while gaining facial hair
(now isn't that a kick in the teeth) weighing at heaviest 238 lbs, being
told I would never have children.  A doctor offering to wedge my
ovaries...thank the Lord I didn't do that.  Four endoscropic procedures,
heavy periods, etc...


The blessings are in between this bouts I have managed to have two
beautiful girls (We have not used birth control in 9 years and have
never conceived again.) This past year I finally found a vitamin
program/weight loss that has worked and have now gone from a size 18/20
to a 10/12.  It has taken 8 months to loose 40 lbs and 33 1/2 inches.
Which while it is slow medically speaking we know it is healthier than a
super fast weight drop.  I have not had any issues with holding my
weight down and in fact have lost quite a bit more inches than weight.
The facial hair is still there but at least my hair is not falling out
anymore and I am trying to walk 5 miles 4-5 days a week so my energy
level is great.


If anyone is interested in this program just write back...  It really
has help me.  I am going to be 40 in a year & 1/2 and made up my mind I
was not going to spend the next 20 years feeling unhealthy like I spent
the last 17 regardless of my disease.



--
Elizabeth


------------------------------


Date: Fri,  4 Jan 2002 12:49:55 -0600 (CST)
------------------------------
From: anonymous@obgyn.net (Barbra)
------------------------------
To: anonymous@obgyn.net
Subject: Re: I don't mean to come on too strong..........
Message-ID: <200201041849.g04IntE12614@mail.medispecialty.com>


At Fri,  4 Jan 2002, Panacea wrote:
>
>At Fri, 4 Jan 2002, anonymous@obgyn.net wrote:
>>
>>ouch kids.. we are in this together and speaking as the mood swing queen
of
>>the PCOS world.. i know how impatient and irritating somethings can be..
but
>>show a little love... we are all #$%^&*,  lets not get on each other's
>>nerves.
>
>LOL... if anyone can understand mood swings it should be us :)
>
>--
>Panacea
>Diagnosed PCOS in 1998, didn't get treated until 2002 :(
>


Yup,A little humour here might help!


At least I learned how to spell "lose"....LOL!!!!


I had to laugh when I read that message with the mood swings.
I am also the Queen of PMS


Oh,it was not me that posted the original message out there about
ketosis....just not to let anyone's raging hormones get ticked at me,but
I too,seem to always spell "LOSE",as "LOOSE",so at least she helped me
with my spelling.


I agree with Panacea,we should be here to support one another,not take
it out on one another.
I read the article that anonymous wrote about ketosis and at least it
helped me to research further into what it was,as I had no clue and at
least now,am able to understand what it is,as I myself was in it and
always wondered what it was,but never got a solid answer from my endo
and never took the time to research it,,,at least now I did.All
messagess regarding ketosis helped me alot!


Anyways,I think that anonymous was incorrect about her opinions on
Ketosis,but was possibly trying to help,as I know NOW,that it is a good
thing for burning fat for a short while,not over a long period.Possibly
this is what she was trying to tell us.


I think that some are just trying to help a little from bad experiences
that they may have gone thru,as I did,when I was completely out of
line,expressing my bad experiences with anti-depressants.
I now regret that I ever did that,as I now fully understand that
resorting to those meds are what some of us need to make it thru a day.


It is a struggle,so on that note,I am off to take a shower(uggg),sends
my heart palping........morning work-out of the day for this
PCOS"er!LOL!


Warmest Wishes to All!
Hugs=)



--
Sincerely,
Barbra Camara


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End of PCOS-DIET Digest 465
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