PCOS-DIET Messages for June, 2001: Re: New to PCOS and scared

Re: New to PCOS and scared

From: Teresa (anonymous@obgyn.net)
Wed, 13 Jun 2001 15:40:37 -0500 (CDT)

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At Thu, 31 May 2001, Melissa wrote: >
>At Thu, 31 May 2001, Robin wrote:
>>
>>Hello everyone.I've just been told I have pcos and I'm very scared.
>>I'm 34 and will not be having any more childern so that is not my
>>problem.
>>i'm like 50 lbs over weight and fight to lose weight all the time.
>>Here r some questions I have, if anyone can help please do. I'm so
>>devastaed over this.1. what is the hair growth like and does everyone
>>get it?
>>2.my insulin isat 90. and i was told that is good so am i still at a
>>higher risk to gain weight? 3. does the medication like birth control
>>make you gain also? 4. I also heard that you not only grow hair on your
>>face but MAY get male pattern baldness. 5Iwomen younger than I 34...
>>got this? the doc. said someone in my family had to have this also but
>>no one does..can I be the first and pass this done to my daughter? I
>>don't have any acne,should I be expecting that also to come my way? I
>>hope someone out there can answer thesequestions my doc. just shrugs
>>this off saying I'm lucky to have children already.
>>Sorry for rambling on like this but I'm going on 2 hours sleep. I'm
>>just sick over this...
>>Thanks so much everyone,
>> Robin
>Hey, Robin--

I am in the same boat as you, I am 29 and was diagnosed two weeks ago. I am in the process of getting in touch with the right doctors and know nothing about treatment. I've read a great deal about insulin and my mother suffers from Type II diabetes and has never been diagnosed but has the same symptoms. I just want to qualify several things that you are saying. I was scared at first and my doctor was a total jerk about it. He told me I would gain more weight and eventually have to shave my entire face if I didn't get back on birth control pills. I am 29, married, and definitely want to have children. Even as I write this I think of the horror stories that I've read in the last couple of days. We are women and we desire to be sexy and not bald. I feel better knowing what it is. I didn't know why my hair broke of all of a sudden and I started having these symptons in 1995. I was getting yearly paps that checked out fine. Now all of a sudden I have what my doctor calls a disease not syndrone. What do I do? I pray and God has opened so many doors to understanding what this is. No, I don't want it and ask the question why me? All I hear in response is why not you? Please k.i.t and lets keep each other encouraged. What did your doctor tell you to do? It is a blessing that you have children already. I am still believing God for mine...Teresa >Robin,
>I don't know if I can answer all you questions as I am just starting out
>with this myself. I was just technically diagnosed with PCOS lately. I
>am 26, my sister 24 has it and my Mom 46 has it. My sister just had a
>large cyst removed last month which was causing her a good amount of
>pain, she also has the facial hair problem and weight gain. She has
>begun med to help with all of them and the dr says she should be feeling
>better soon. My mom has a more sever case. She has the weight problem,
>hair, and she has lost a great deal of the hair from the hairline above
>the brow back to the crown of her head. I have some thinning of the
>hair, some unwated hair in places it shouldn't be and a little bit of a
>weight problem. I did however lose over 100lbs when I was in college. I
>don't know if it was just because I was so focused on losing it or b/c
>my PCOS wasn't as advanced. I have gained about 20-30lbs back since
>I've gotten married but my job is also very different and I'm not as
>active.
>As you can see there is varying degrees in my own family. I do believe
>that is is something that can be passed on to offspring(don't quote me
>on that). I don't really have an acne problem...I still get one or two
>around the time of my peroid but I don't think that has anything to do
>with the PCOS. Everyone has different side effects...some people have
>them all and others one or two. You can still carry on a normal life.
>And you have one less thing to worry about since you already have your
>kids...I'm just beginning that journey and the crap is making it harder.
>I would advise you find yourself another dr who doesn't shrug off you
>concerns and questions. An educated and concered dr will listen and
>help you find the best treatment for you! My Mom and sister both see
>endocrinologist and I see a fertility specialist who is in practice with
>an reproductive endocrinologist.
>Don't let it scare you, I won't tell you not to cry a little(well, even
>a lot for a while) but you can't let it take you down. You are no
>different a person than you were before you found out. We just have a
>few hurdles to jump every now and then. The most important thing to do
>is to understand how it affects you and not listen so much to what has
>happened to others. It may never happen to you. I'm not saying that
>it's not good to be informed about the possiblilites but don't worry
>about them until they happen and then attack!
>
>I hope this has helped some, I'm still learning myself...I don't know
>anything about the whole insulin levels, maybe someone else can be more
>helpful in that area :)
>I wish you good luck and hope you can start to feel a little better
>soon!!
>Keep us posted!!!
>Melissa :)

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