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Re: New to PCOS and scared

From: Melissa (anonymous@obgyn.net)
Thu, 31 May 2001 15:54:49 -0500 (CDT)


At Thu, 31 May 2001, Robin wrote: >
>Hello everyone.I've just been told I have pcos and I'm very scared.
>I'm 34 and will not be having any more childern so that is not my
>problem.
>i'm like 50 lbs over weight and fight to lose weight all the time.
>Here r some questions I have, if anyone can help please do. I'm so
>devastaed over this.1. what is the hair growth like and does everyone
>get it?
>2.my insulin isat 90. and i was told that is good so am i still at a
>higher risk to gain weight? 3. does the medication like birth control
>make you gain also? 4. I also heard that you not only grow hair on your
>face but MAY get male pattern baldness. 5Iwomen younger than I 34...
>got this? the doc. said someone in my family had to have this also but
>no one does..can I be the first and pass this done to my daughter? I
>don't have any acne,should I be expecting that also to come my way? I
>hope someone out there can answer thesequestions my doc. just shrugs
>this off saying I'm lucky to have children already.
>Sorry for rambling on like this but I'm going on 2 hours sleep. I'm
>just sick over this...
>Thanks so much everyone,
> Robin

Robin, I don't know if I can answer all you questions as I am just starting out with this myself. I was just technically diagnosed with PCOS lately. I am 26, my sister 24 has it and my Mom 46 has it. My sister just had a large cyst removed last month which was causing her a good amount of pain, she also has the facial hair problem and weight gain. She has begun med to help with all of them and the dr says she should be feeling better soon. My mom has a more sever case. She has the weight problem, hair, and she has lost a great deal of the hair from the hairline above the brow back to the crown of her head. I have some thinning of the hair, some unwated hair in places it shouldn't be and a little bit of a weight problem. I did however lose over 100lbs when I was in college. I don't know if it was just because I was so focused on losing it or b/c my PCOS wasn't as advanced. I have gained about 20-30lbs back since I've gotten married but my job is also very different and I'm not as active. As you can see there is varying degrees in my own family. I do believe that is is something that can be passed on to offspring(don't quote me on that). I don't really have an acne problem...I still get one or two around the time of my peroid but I don't think that has anything to do with the PCOS. Everyone has different side effects...some people have them all and others one or two. You can still carry on a normal life. And you have one less thing to worry about since you already have your kids...I'm just beginning that journey and the crap is making it harder. I would advise you find yourself another dr who doesn't shrug off you concerns and questions. An educated and concered dr will listen and help you find the best treatment for you! My Mom and sister both see endocrinologist and I see a fertility specialist who is in practice with an reproductive endocrinologist. Don't let it scare you, I won't tell you not to cry a little(well, even a lot for a while) but you can't let it take you down. You are no different a person than you were before you found out. We just have a few hurdles to jump every now and then. The most important thing to do is to understand how it affects you and not listen so much to what has happened to others. It may never happen to you. I'm not saying that it's not good to be informed about the possiblilites but don't worry about them until they happen and then attack!

I hope this has helped some, I'm still learning myself...I don't know anything about the whole insulin levels, maybe someone else can be more helpful in that area :) I wish you good luck and hope you can start to feel a little better soon!! Keep us posted!!! Melissa :)




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