PCOS-DIET Messages for May, 2001: Sharron,

Sharron,

From: kim

anonymous@obgyn.net

Sat, 19 May 2001 07:58:15 -0400

Hi All,

I don't usually post, just lurk here.

I just wanted to say to Sharron, it is so important to get your daughter help.

I was dx with pcos when I was 19, after suffering since 11. At 31 we bought a computer and my eyes were opened and my life was changed.

From 19 - 30, I was told I might have a harder time getting pregnant, but, that was all pcos meant. From 25 - 30 I spent all my time at an IF clinic, doing injections, clomid sperm washes, IUI's etc. I have had 6 m/c's from 25-30, and 2 chemical pregnancies between 31-32. This is were I am now.

When we bought our computer last summer I started researching pcos. I quit the clinic right away, and realized that pcos was so much more then an fertility issue.

I have all the symptoms, and have had since 11. I found a wonderful endo, then RE. They did all the required tests and this is what all the others had missed over the yrs.

Thyroid failure (now on meds for life),hyperinsulinenemia with IR (now on met for life),clinical depression ( I stopped using anti-depressants a couple yrs ago), microplasma in my CM, estrogen and progestrone defishency, high DHEAs, infertilty, repeated m/c, obesity, I'm sure there is more but, I don't like to focus on them all.

My point being, through this whole post, I was in BAD shape, I TRULEY believe that it wouldn't have been so sick if I got help earlier.

Do not give up!!! I went through over 25 doctors and specialists over 20 yrs, before I found the 2 who changed my life!!! They were almost worth the wait!!!!

Growing up with full blown pcos- stinks -I remember it well. We never thought I would make it through them, but, I did.

If your daugter would ever like someone to email - just to talk about all this, I would be pleased to email her back. Just let me know.

I have a sister who has just turned 13 - who is starting to show some signs. It really scares me. How old is your daughter??? It is so good you are doing what you can for her!!! Don't give up.

My favorite site with tons of info on it is, www.soulcysters.com Excellent info provided there.

Hope this helps some,

Kim from Pickering, ont. Can.

>Subject: Re: JOAN:):) Sorry so long

>Date: Fri, 18 May 2001 20:01:07 -0500

>At Fri, 18 May 2001, Joan wrote:

> >

> >I hope you are going to see an endocrinologist or a Reproductive Endo.

> >At any rate, at the very least he/she should be well versed on the use

> >of insulin sensitisers like glucophage(Metformin) Avandia and Actos.

> >Met. is the most common one and considered the safest-it can have bad

> >GI side effects. Avandia may be more effective but can cause wieght

> >gain and has not been on the market for a s long. These medications can

> >be very helpful. There are alot of different opinions about diet-I

> >won't try to anticipate what your Dr. will recommend. You might wish

> >to look at the book "The idden Epidemic' by Samuel Thatcher for a good

> >overview of the syndrome.

> >If you'll forgive me for offering unsolicited advice: I was put on a

> >number of diets as a youth and it was not a positive or productive

> >experience. I hope you include your daughter in the decision making

> >process. I encourage you to consider changing the way everyone in your

> >household eats to help support her. It is no fun eating 'special' food

> >-it adds to a sense of deprivation and can be self defeating.

> >Your daughter sounds very lucky to have a mother who is as concerned and

> >involved as you are. I wish you both the very best of luck.

> >Joan

>Joan,Thanks for the info I appreciate it more than I can ever tell you.

>Tabitha is my daughter and she does see a endrocrinologist.A neuro

>diagnosed her though if you can believe it. She had been having

>unexplainable fainting at school,work and then it happened when she was

>driving.We feel lucky to have her and our youngest daughter at all

>now.She was in the car when tabitha fainted and they wrecked. God was

>definitely looking out for my girls.Our family daughter sent her to a

>neuro because of the fainting and it just so happened before the wreck I

>had taken her to the endo only because she had started getting alot of

>hair on her back,sideburn area and the under her chin and she was really

>feeling bad about herself. He did blood test to find out about the hair

>problem and found out that it was her ovaries.We havent seen him again

>yet,he faxed the lab results to the neuro and he told us and left us to

>guess the rest till her appt.with the endo on thursday.LOL Gosh sorry I

>just started typing and got carried away. Thanks for listening.

>sharron

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