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Re: Cystic fibrosisFrom: Alicia Huntley (ahuntley@interserv.com)Fri May 15 23:08:33 1998
Jude: the local perinatologist had this covered in a recent newsletter. If I find a copy I will post it, but you might want to call and see if they will mail you one. the doctors are Katz and Farmer, they have a CNM in practice with them, and their office phone is (541) 349-7600 or (800) 970-7419. There is also an NIH consensus statement about genetic testing for CF http://odp.od.nih.gov/consensus/statements/cdc/106/106_stmt.html , and the American College of Medical Genetics ( no web site that I've found) replied with a counter-statement. One thing to be aware of is that there are over 600 different mutations that have been identified in the CF gene! good luck alicia -- ---------- > From: Tim and Jude Kurokawa <jkuro@midrivers.com> > To: alaska list <midwives@lists.alaska.net> > Cc: OB/GYN List <ob-gyn-l@talk.obgyn.net> > Subject: Cystic fibrosis > Date: Friday, May 15, 1998 17:53 > > I have a young couple who came to me today to confirm her pregnancy. She > has several relatives with cystic fibrosis, although none in her immediate > family (2 sisters have unaffected children.). She wants to know what her > chances of having a child with cf and whether there are prenatal tests for > it. I've looked on the net for some info, but found nothing definitive. > Any suggestions of where to look, and any advice? > > Jude > V<>V<>V<>V<>V<>V<>V<>V > Jude Kurokawa, CNM, FNP > 513 Dayton St. Wolf Point, MT 59201 406-653-1608 > Home and Hospital births on the Rez > The Coyote midwife sits by the hole and waits.... > mailto:jkuro@midrivers.com HTTP://www.midrivers.com/~jkuro > V<>V<>V<>V<>V<>V<>V<>V<>V
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