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Re: Ethical issue with a Androgen insensitive XY person From: Allen Gardner (allen.gardner@utoronto.ca) Thu Apr 16 18:49:01 1998 Messages sorted by: [ date ][ thread ][ subject ][ author ] Next message: HHodesmd: "Terrible KS Law" Previous message: Jeffrey W. Clemens: "Re: GEN: Mac vs. PC." In reply to: anil: "Ethical issue with a Androgen insensitive XY person" Next in thread: james Connerth md: "Re: Ethical issue with a Androgen insensitive XY person" Reply: james Connerth md: "Re: Ethical issue with a Androgen insensitive XY person" A recent article in the newspaper here by a women with AI was somewhat critical of how her situation was handled. She spoke of her doctors being evasive, embarassed, uninformed ,etc. etc. I believe all she had to say. However you handle it try not to fall into that trap. My training included a caveat that one doesn't tell the whole truth and it was based on one consultants experience with a patient who committed suicide. OK, you can argue which came first, the poor self identity or the knowledge she was XY, or just the common mood disorder that many people have. I think that health care and disclosure have done an abrupt face. This is probably the most challenging counselling situation we're going to run into but I think that she should be told the truth about her own biology. This could be a fun string. Allen. -- ======================================================= At 15:01 16/04/98 -0400, you wrote: >Recommendations requested: > >24 yo female presents with a h/o "operation" in India for >"bad ovaries" at age 16. No other medical information >available except never menstrual. >Currently married, sex active w/o problems. > >CC: Wishs to know why she had her ovaries removed and was born >w/o a uterus. > >Exam c/w androgen insensitivity syndrome (well developed, >no body hair, shortened but adequate vagina). U/S confirms >no uterus, ova-testes. > >How far would you go in the work-up? Could present a major >shock to be found XY, though always a woman. > >Anil Singhal, MD >VersaForm Systems Corp. (408) 370 2662 >591 W. Hamilton Ave., # 201 Campbell, CA 95008 >Excellence in Medical Software http://www.versaform.com > Allen Gardner MD, Director of Genetic Services Oshawa General Hospital, Oshawa, Ontario, L1G 2B9, Canada Associate Professor, Department of Laboratory Medicine and Pathobiology, University of Toronto 905 433 2733 phone 905 721 4757 fax Next message: HHodesmd: "Terrible KS Law" Previous message: Jeffrey W. Clemens: "Re: GEN: Mac vs. PC." In reply to: anil: "Ethical issue with a Androgen insensitive XY person" Next in thread: james Connerth md: "Re: Ethical issue with a Androgen insensitive XY person" Reply: james Connerth md: "Re: Ethical issue with a Androgen insensitive XY person"

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