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Re: Apert's syndrome support groupsFrom: Nancy (bwell@visi.net)Fri Nov 7 20:52:05 1997
I am writing to request information on Apert's syndrome for a genetics presentation I am preparing. Any information on the background of Aperts would be very helpful. Thank you, Nancy At Mon, 12 Aug 1996, fuf@gulf.net wrote: > >>I need the names and phone numbers of organizations that have support groups >>for parent's of infants with Apert's. > >Dr. Moreno (and members of The List), > >The most complete list of support groups for genetic conditions can be >found at the following web address: > >http://www.kumc.edu/GEC/support/supgroup.html > >>From this list, I found the following information for support groups for >Apert syndrome > >About Apert > 9 Jones Street > New York City, NY 10014 > Phone:(212)645-7038 Contact: Augusta > >Apert Syndrome Pen Pals > PO Box 115 > Providence, RI 02901 > Phone:(401)421-9076 Contact: Christine Bucci > >I hope this information is helpful. > >Gary > >Gary E. Kleinman, MD >Perinatologist/Geneticist >University of FL/Pensacola >5045 Carpenter Creek Drive >Pensacola, FL 32503 >904 484-9400
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